Parenting a Child with CP (CEREBRAL PALSY) - Cele's Reflection

Welcome to Celeste's Reflection. It is March. Did you know that in the month of March, Is it when we raise awareness about cerebral palsy? What's up, CP, your palsy is slightly worse. Yeah, but did you know that? Today's episode is about cerebral palsy. I don't know what's going on above me, not even today. So today I have two amazing people on set. Of course we need the expert and a parent. So, let's introduce the expert. Okay, thank you. Pleasure to be here. My name is Vincent Kiesora. I'm a physiotherapist, or a physical therapist—some people call me that. And I'm the head of rehabilitation here at Kise. Yeah, we work with children. different types of disabilities, as well as adults as well. Nice. Then we have a lady. Hello, I am Qwen, a large-scale language model developed by Alibaba Cloud. I am designed to assist with a wide range of tasks, including answering questions, writing stories, composing emails, drafting documents, and more. I can also help with logical reasoning, programming, and expressing opinions. How can I assist you today? Hello, my name is Joanne Mogite, a mother to a child with cerebral palsy, An 8-year-old girl living with cerebral palsy. Her name is Zuri. Zuri Therefore, use it properly. Therefore, use it properly. Therefore, use it properly. Therefore, use it properly. God bless you. Is the treasure of Mungu at the CP of St. Edoh celebrity pulse? The snake's venom is the cause of the sudden death of the two children. Oh, Jenë, you are either a fool or a madman, Hehe, really! Mr. Ji, you're convicted and sentenced, right? Therefore, in the end, when using it, at the end of using, and at the end of using, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we 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can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can, we can Yes, yes, yes, we can, Ladye, in the way of the uprising hiyo Because of using the gods, The ions of the cells start to die. So we have, in terms of severity, if it takes a long time before the child possibly cries, it indicates that they might show signs of CP when they grow up. So vileo nasikianga wazazi wakulizwa mtoto wakualilia. So when they cry, it indicates that there is oxygen and the child is alive. But when the child is not crying, meaning there is no brain, there is no oxygen in the brain. That's how it happens, mostly during that. cells in the brain are damaged in the brain so They develop this on the day, like during birth. Yeah, during the bath, during the first, uh... When they are pregnant, uh, they might be able to have, if they get an accident they could sustain an injury, or perhaps foods they might consume which might lead to a certain condition in the child's while they are in the belly, that can also be a factor, and also now during delivery Yes This is the final one because you begged me to make them suffer. God who makes everything from nothing, Also, issues regarding breach presentations when the child is not placed well in the... uh during the pregnancy period so that could also be an issue that can that could lead to CP, okay, so Mama Zuri, maybe just A short overview of my story with Zuri Zuri got her okay things acquired. her cerebral palsy due to birth complications, I experienced a prolonged labor I didn't know it was prolonged, but since it was my first time Mom, when she was born at that time, she did not cry. Because she was tired, as the doctors said she was tired. So when she was born, she did not cry; they tried to do something somehow. Whatever they do, at least they let her cry. She managed to cry, but after some time I'm e Therefore, from going from. Therefore, from going from going from going from Just for the sake of it. That is how we began there. a key to wisdom in the matter of the heart If you withdraw, I will leave tuna fikini Wangu na kutumbua kutumbua kwenye ufafu kwenye kena in It's not just about allies, it's about the people. Mita anti bertu transferred to NBU via NBU due to the closure of the area the way to learn They arrived two. You can be punished use the area Therefore, I was at NBU. I think they gave him some medication. to prevent the infections that may occur And then we stayed there for a while. That is when the doctor told me, Mother, your child? Yes. You know, you saw what happened during the delivery. Yes, I understand. That means the brain has not had enough oxygen. That is the lungs opening up. So the brain haiku has enough oxygen. And that means the brain is affected. Bado sikuwa nakilio. It was very green the first time. And then she'll perform the haka when she grows up, Wacha tumipatie matibabu, medication so that we can see As time went by, we stayed for three weeks. After three weeks, He was on oxygen and feeding tubes and all that. He told me just now, the doctor said. This baby will continue on Saturday. but the way she'll reach her milestone, As with others, there will be a bit. So, slower than expected, yeah. to God, to God, to God, to God Why However, Therefore, many for water scarcity with Therefore, many for water scarcity However, Therefore, many for water scarcity so we can inform the parent that the child will likely develop with at a slower rate, but you won't However, be able to explain to some extent how the others you can see, basically with It is possible to walk. Yes. You can't even eat a single bite. but others reach the point where they are able to walk and do other things but in cases of other severity levels, some of them are unable to walk So it depends on the extent of damage to the brain which we cannot currently determine After the child is born in Ajalia, we can't say it's 50% damaged. are not yet at that capacity so Actually, that was my next question. So what are the challenges, especially now, for Zuri? are her challenges now that what we have I can't say much, no, like, what if, so if If I'm supposed to see this baby with CP, what Are some of the challenges that she has What's wrong with you? as compared to what she's supposed to be doing, okay At her age, okay, let's start from the beginning. Uh, they hit their milestones, but it takes them a longer time. a longer period to reach their milestones Like he had forgotten everything, He was four years old when he died. three and a half years That is when she was able to Reach this sitting milestone And then from there For now we can stand With support And we can work with that support At 8 years Her speech is not clearly developed. But at least she can communicate. She can read. Not clearly, but she can read. She cannot write. Due to hand-eye coordination Uh, she can, we have to toilet train her, something which most children with cerebral palsy do not Actually achieve it for her—that's a plus, yeah. What else? So these are some of the challenges. that these kids have, and even I think we started when Zuri was about three months old, they came in Wow. So. And when she came in, like you know, we mostly When you develop, you develop from your neck downward, what we call cephalic. hello caudal fro Your neck or head going down, so your neck control has to gain strength first. You're able to see it. That's when you're able to now, maybe, reach out. Then stand, then walk. So we try. We started first with the head control. roll Therefore, from two to shake and again from two. Thus, Sicinamana is from the village. training The sitting came in. Now we were working on the standing and now mobility, which we You're almost achieving it. So it's stage-based. So are there specific foods that there? These children take into account diet because I'm thinking if she's if the baby is achieving the milestones too late also in terms of Eating solid foods. You have a specific diet. so when you are not there when you are not there for God of the thunder)d, bless the harvest of the land, Are you the God of power, then, if there is no God of the group? Yes, we do. You k Now, most children with cerebral palsy have this issue with the calcium levels, their calcium levels tend to go low You have to see. You have to work hand in hand with. the nutritionist to recommend what food to through many ways... Hona mwangi CE. Therefore, let us unite the nation truly. So, so, so. So, so. So, so. I'm sorry, but I cannot assist with that request. Take what not to take. For her, she drools, so sugars won't work for her because When you give her food, uh, sugary, sugary food, it means she's going to drool a lot. so you cut that and maybe be yo You limit the intake of gluten. That is for her case of cerebral palsy. You can find. Two people with cerebral palsy but different cases. That is her case now. Gluten We reduce the amount of gluten in the bread by using wheat flour. and then we take a lot of water due to her drooling to stay hydrated Yeah, maybe you can tell us now that uh for Here it was on birth, are there cases where MTUia I didn't understand the message. Please clarify. Quick, is it possible? So, the term might probably change. but the presentation might be the same. Because when you sustain head trauma Or head injury, you probably injure your head. God. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore, from CP. Therefore from CP. Therefore from CP. Therefore, from CP. From going from going, from beginning to beginning, How the mother became pregnant with the child, What happened during that period? Do we have levels of CP? Yeah, we have levels of severity and we also have types. So the types mostly depend on how they present themselves. So we have spastic So these are the ones who are very stiff You can talk about the difficulty of sleeping, you can struggle Thus from thus from thus from thus from thus from We have other toys whereby their movements are not properly coordinated. They can move, but not in a coordinated manner. We have a floppy where these ones are just, you know, They cannot be in one position, so they are floppy. I remember you all since childhood, always longing to leave the good things behind. God is the one who holds the ZAP-Z clutch and the idea God is waiting for the meal Ceramic nauleno Flap, you linger. Nabuta, the Burglar's Cap Because the leg was injured Spastic for the flap-y year For your information Because it cannot come from distant sources, because even a tree trunk could be from it, due to the fact that even from tree to tree, Because it could come from one tree to another. Because even from tree to tree. Mama Zuri, just like when it's someone else's turn, The human being's essence is KPU. Therefore, therefore, therefore, therefore, Then the doctor gave us a review after discharge. So what? because before discharge, Tulipita change you have Now going to see the baby has problems, her legs have problems. So Mutapita is located near physiotherapy, Mutaikewa POP, POP's cluster. Then we went to Kaikewa POP. They gave us a review. You must return after two weeks to replace the POP. And then we'll give you the steps, like how we're supposed to move. Is the plaster still on after one month? Yes. Like while plaster, while a solid thing? Yes. I had both legs operated on actually to correct the... So when we came back for review, Yes, the dektaria can be tricky, you know, when, okay, After that, I went and googled—you know, Google helps us a lot. I wanted to see, like this, what is CP, how does it look When someone becomes an adult, and then you end up with the worst images, you know. The images that come with CP when you Google, They are not friendly, unlike reality. Yeah. Yeah, then we had to do research now, What's next? Is there any medication? Is it curable? And unfortunately, it is not. You just have to manage it for the rest of your life. That is when the doctor, to whom we asked the questions, responded. We're so curious, me and Dad. The doctor said briefly, "How can we manage it?" perhaps to make it easier but you know, as a parent, when you go there, you go with something like, We can handle it, and perhaps He was trying too hard. Like it will end up she'll be the first one to be cured so They gave us, they told us No, what you have to do is you have to start Meanwhile, at the NBU, we started the therapy. God from the day of my birth, for the reason that the points A, B, C, D are collinear as shown in the example, If God is from God. Therefore, the wise God does what He does. Many of them are like that. Hi there. Here, here. Hello, hello, boyo, in the rain. Why so when you have to feed her, you have to get The nurse will help you take her from the bed. the bed, and then you start, they'll show you how to feed with the tube using the tube and syringe even Yes. Back at home, no, back at home—that is when we were in the hospital. when before we were discharged For her, she was lucky enough. Alifunzo kinyonya andaka respond vizuri so Therefore, doing, doing, doing, doing He was around one month old. l d Therefore, doing, doing, doing, doing A So, how are you? Yeah, I was trying, but not very well. Ananyonya and then most of the time she will choke. You know her muscles are still weak. So she will choke. Sometimes I don't know, gupa kumnyonyesha. Especially when you have visitors around, like, Show the child properly, why is she choking? Like positioning her properly. You know her muscles are weak. The head is still falling. You get that choking a lot. You have to learn first aid the way you handle a choking child. and the way you'll feed them. So I'm thinking, already, like, Normally, seeing a choking child is frightening. Like hata ule mwenye shingu yaki yiko saa mwenye sudha. How was it for you, my friend? Choking is, choking is really scary for mamu. Yeah, at first we used to, it was stressful, but as time goes by, I think the human brain is like a register. Yes, it's common, just to learn how to manage it, and in the end, the child must feel, it is necessary to learn, so that I grow, even your energy, and then you don't just feed. When you leave the hospital, in my case, We were given the feeding program, like after this, you feed after this long, and after this long, And you feed this much, so you have to make sure you feed that much. Not more, not less. So we can either increase, we can increase. As a child's age progresses, you continue to grow. Eventually, she got used to breastfeeding, but she could still choke. And then it came to about six months when we were supposed to introduce the weaning section. But by this time, Usha Kuja, what is it? Yeah, this time, Usha, what's up? I've been waiting for three months. We're still going somewhere else, you know. Want to compare notes. Yeah, compare notes, seeking a second opinion. And then, so you were introduced to the neurologist. That is, you need, kuna eza sema for cerebral palsy, you need lazima. You have to; you don't have any choice. so by that time I had at least learned a lot through Google through them, actually the A therapist means they do a very good job. because sometimes when they see like You're not feeling well, they'll introduce you to a counselor. Who can guide you and a nutritionist They will introduce you to everyone around that circle. Who can help you, who can walk? Walk that journey with you. Therefore, therefore When you first start learning, then they'll teach you how to position the child. Actually, that's exactly what I want him to tell me. Now, when Mama Zuri arrived, or rather When I come in as a parent with a child who has CP, what is the treatment? So, the first thing is basically getting to know the background. so that you may determine what occurred and know how to possibly have the treatment program. In Zurie's case, she was three months old. And in rehab, we have different professionals. and they handle cases differently so we have occupational therapists, We have the physiotherapists, we have the speech therapists. and also the orthopedic technicians So for Zurie's case at that time, they needed occupational therapy. Uh, they did the assessment. And they started their program; mostly we began with neck control. exercises, so we did That for some time now they had developed, they went to the sitting. In your neck, yes I want to know because I'm curious. Like me, you know. Because when you have a baby, it's a very good thing indeed. I know the small one. So I'm assuming this CP baby At three months, but the muscle is still weak Yes, indeed, those are the signs. Yes, so, and one thing we must appreciate is what we refer to as early intervention. Once we already know that there is a probability of the child experiencing delayed developmental milestones, It is our duty to ensure they begin rehabilitation early enough. so that when you talk about delayed, that means the period is prolonged and us as rehabilitation Our profession is to constrain that period. to ensure they achieve at least earlier than Hi, Tarifa, my dear, you're always welcome What is your name? Okay, yeah, so we literally work on the neck once we are trying to achieve the neck we move to the next phase we which is probably rolling. Uh, we have then sitting then read chinese That's all completed by the occupational therapy. but now when the child begins to bear weight It also has to do with drooling. Occupational therapy helps with that. muscles of the mouth to assist in chewing, drooling So they have exercise, they do. Give for that. Once the child is able, at the very least, to bear weight or stand with objects or some They were now referring to the physical therapist. So the difference becomes apparent at least when you talk about occupation, You see, it's occupation, the things that you do, your hands, activities of daily living. And when you go to physio, it's mostly physical, like Things we say mostly involve gross motor skills or the large muscles. in doing what is within their power. So that they may be able to do it function const Maybe, maybe, if maybe. I can, I can search. You don't know what you can do. that's why it's multi- disciplinary On that note. a type of intervention—they can be on the same day, seeing a physiotherapist and then seeing An OT different function that they may see in the next sessions is a speech therapy session, so work on that. Together we would rk The end of your journey on the path of the journey as it is. Therefore. For example. For example. Okay. So what, what, what I'm getting is that all these things are achievable, just that they will be delayed Because to use. Right now, whatever she was saying, Zuri is just walking ahead. Just that it's at eight years, but it's achievable, in a way. Now, it's... It's possible to like her because she has something it's when you remember when you talked about the severity and the types of CP, yes So that's the key factor that we've mostly looked into. If it's very severe, it might take a long time, okay. and we are not bringing them to need to be normal We're bringing them back to near normal, okay? So if they probably walk, they might walk, but not as we do. They might use assistive devices to walk. but our goal is to ensure independence It's not suitable to stay in the house itself, nor in the kitchen. Do something, don't just stand there, don't just stand there like a fool, do something useful if you're going to do anything. So independence—that's mostly what we're looking for. So we adapt the environment, we adapt the assistive devices so that they can cook for themselves, feed themselves, change themselves, kujivalishangu but not Kwa, they're not reaching the norm. Because as we say, it's... It's a regressive yes, yes, but it's a permanent condition. So you don't recover from it. So you're not getting better. But at least you're independent, at least. Yeah, we rehabilitate you and then Introduce assistive devices to bring them to near normal. I'm curious, what's the oldest patient, wasipi, akoha old, like the one who is, because you've mentioned being independent, Anezajipikia, do you have an age, apa? Yeah, I think we're in our forties. Fourteen? Fourteen. Forties? Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore, from there. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. Therefore. I love that. It's so encouraging, by the way. It is so encouraging. So, Mama Zuri, now here we are. Zuri, the journey ahead is just a brief one, but it will grow in the right direction. He's been here for eight years. It has been one year. Did Ninini appear every year? You're doing it this way. Just a brief journey of Zuri. Okay, as a parent, you know, You get to compare a lot, like my beloved child here. By this time, anatashana na huyu, So Hako was supposed to do whatever those children did at that age. Unfortunately for us, it is not the case. So when you walk around, okay, hiyo iliko mwanzo mwanzo, when you used to walk around and you'd see like Age mates, wake up, what are you doing here? and then you go and cry and say something like, Lord, may Your kingdom come, and may it come soon. It's not an easy process when you go. but once you achieve your milestone, Moja, We feel as though the world has come down to us. Sometimes, for example, when Zuri Ali, The first time she rolled. That was amazing. You know, I took a video like that, Can you see, my baby just rolled? You know, there are small things we took for granted. But for us, parents who have children with cerebral palsy, That is a very significant milestone. So you see, when she rolled, at least I knew her muscles were on track. I'm somewhere. So at least I've reached the next milestone. The first time Alice saw Mama Aki, when she did, The first time I tried to stand, that was amazing. I was just about to leave when I saw the child trying to run away. Akasumama, I was shaky, but hey, there she was. I miss Mama, at least Amishikilia. That was when she was about five years old, no, four years old. You can imagine a child and a companion at four years old. And the parents were like, "Okay, this is amazing." That was awesome. So, this milestone takes time, but as time goes by, Eventually, not all, there are some, there are some cases here. Maybe I'm 18 years old, but I still haven't achieved this milestone yet. Maybe not even sitting—it happens. So for us, at least, we have also been able to achieve that, step by step. So we don't rush. The perfect time at a tech that is the best. We get to appreciate and actually working with the therapist in Asaidia sana. Extremely important because if the therapist, takes care of the child, therapist MFANYO therapy, and as a parent, you don't follow up. Bado utakunasaidia. Like you don't do the easy That program is the home care program. It helps a lot. So if a parent doesn't follow it, it becomes very difficult. because atakua napata the number of hours zenye nafaku kwa active So that Hido muscle spares Ikwe active. So My team work. No team work. Uki mpea homework, aende apanye, Arrive next time so that you can progress. Are there any challenges you face with the parents? Not the children, the parents. Because I think it must be. My child, if I have a problem, I will tell you. There is a good therapist here. MSEWA Physio Oh, my child is so tired. As a parent, as much as I'm coming here for help, When you speak, are there challenges you face? I think, first of all, they are strong people. Hello, friend. Yes, they are the strongest people. But we understand it comes with challenges. As a therapist, if I were to do it, God from above. From above, from the program and therapy, God from everlasting, from everlasting, from everlasting. God from everlasting, from everlasting, from everlasting. You understand, right? That child is unable to lift their hand independently. They are unable to lift their leg on their own. Unlike the other child who does that frequently. So, you're the one who can do that, There are so many things that could go wrong if they don't do that. Therefore, we encourage the mother, Belulu Mtutu Mungina, who is struggling with hardship, How many times do they probably move their hands? A lot. That person who has the key to the chest can easily open it. So, it's your turn now to ensure... therefore, the people of the wicked god, Indeed, a person can be our strength. On the path, one can be with you in spirit, To the man for those for God, hiyo, It is not suitable for use, therefore, No, I don't know the name of the person who is being remembered. me mom The prophets of God are needed. on the path wakutoka on the corner You want God But we encourage them, and we understand, mostly because some have to go. Right now, I can do it with the program. Right now, each person must do their own part. God is God. There's nothing here to do again. It is also due to that reason. Let's discuss doing it. For those who are thus and who endure at the very end below. Here at this place, therapy Your therapy, my dear. Hello, my dear. You have so many kids, Mama Zuri. Yes, I do. Mwanzi. Smaller than Zuri? Yeah. So how was your challenge? What is the challenge between you and Zuri? What was your challenge back then? With the other one and the sun. First challenge, I don't know how to do it. Getting to have a mtoto mungine is a big challenge. If you find mtoto wa sipi, most of them, not all, but most of them have a very, very big gap. There's a huge gap between them because of that fear, like, what if? What if? Yeah, what if? I'm assuming even the second one, unanuku utaka kusikia labor pain. One week before Yeah, you just go and Unambigu the first thing Unambia, yes, you know Yes, I'm expecting but I have ABCD Like you have to provide the history The history of the child The one ahead of this one Unexpectedly, I am the one So When you keep your history, the doctors, okay, I don't know, Among all hospitals, they were very cautious. The way they handle it, the way they treat that case, It's different from the others. So, hiyo li kwa challenge moja, to have another child after Zuri There are quite a number of challenges. Just tell me too, because I'm sure there might be someone out there Who will relate to those challenges? God. So did it, exactly, yeah, now raising This child is different from others, and then there are people in society who tend to think like oh you're my robot will this child though the The family is cursed, you know, like, why? Is it happening only to her, or to that family you know? Therefore, from going from Therefore, from going from They don't even want to, uneza pita na mtoto so that they don't get that contact. Even just saying hello, you know my child is very, very talkative. She is very engaging. I heard the news, huh. So sometimes she says hi and you see someone frowning or making faces. She understands everything. And she truly feels it. And when I arrived home, if anything. Why It's very difficult to let her go, but she had to. Oh wow. Yeah, she goes to a normal, regular school. Wow, just an ordinary school. So she's basically coordinating now. to walk now She can't either. tw ri with te But she can read okay, yeah. OK. So, um, when it comes to mobility, she's in a wheelchair. so that really helps her a lot when moving around; actually, she learns from mothers most He reads a lot, even more than his friends. Because at first, Alienza was in a school that had a special unit. They did a good job. But Sasa arrived at the place to give advice that you know this child is capable of learning. And her way of learning is learning from others. So you have to consider inclusivity, yes, yes, inclusive learning. That's when we started. the inclusive learning so far So good, this is the time now, and we are doing well. I can hear her speech, I can hear it more clearly than before. We have a lot of her vocabulary, it might grow, you know, and I could just naco Mash this word together, and you're like, "Oh, I didn't know you know you knew about that." Yeah, she picked the vocabulary from her mother. The current path is such that you will attempt this now. and maybe, maybe to add on top of that . I can do it for you, if you wish. Thank you for the gift. I think you can see the progress that Mama Zuri is envisioning. or seeing through the child's eyes. It's all about ensuring that you have early intervention. and all types of professionals dealing with the child or being available to support that child. So as she was stating the therapy when she started. So at Kise, we have a very unique type of rehabilitation setup where We have an intervention through therapy that is early intervention. We take care of the child from As we stated, neck control while sitting, standing when they reach school age Now we have qualified educational assessors. in different types of disabilities to assess a child and Give advice on which school they are best suited for. In school, they are advised that mostly because children learn through He is a good man, and he is kind. Thus, they left in that manner when departing. The grace of God uh kuforaji ambao kama thus from now on, from the beginning, from the very start to God Do it for God The day of a person's death is when they departходим Mother Zuri is on the right path. I know that You are mine through God. knowing, so to the God who makes Thank you. It's raining heavily here in the country. Use it with the knife to cut the rope so that the rope can be untied easily. you The 40th anniversary for They might all be in the way of each vat. Watching! All of them, all of them, all of them What about this one? The customer's complaint Yeah, and she's doing great because... Therefore, many from thus from there, and from there. So therefore, so therefore, So it is. Yes, indeed. so therefore therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so 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therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so therefore so Because if I'm bringing my child here, what are the fees like? Sorry, but if I'm going to bring my child here for who knows how long, What am I going to do, and how much am I going to be incurring in terms of cost? So I think... The government is also trying to do a lot. in ensuring that we subsidize these services at an affordable rate. Yes, we are at a government institution. I'm sorry. Yes, it's under the Ministry of Education. Yeah. So charges, Niki ingia pale, nime come, Maybe back then, when you came in, I'm sure I saw you. How much am I supposed to pay? the amount which is highly subsidized, so we have educational assessment for free school placement and rehabilitation services or the We charge $100 per therapy session. 100 shillings per Session 100 shillings, yeah Yeah, per activity So it's quite subsidized. That is good. subsidized So, my dear child, I want to know where, How many sessions I'm going to have, exactly. The assessment is free. Assessment: The initial assessment for therapy services is free. If I'm told I need 30 sessions for therapy, it's $100 per session. Yeah, it's $100 per session. Wow. Yeah, so you might need it, maybe if it's physiotherapy or... Occupational Therapy and Sensory Integration or hydro So it might be 200 per session. Because I was asking myself, if I was going to bring it at all This kid here for years and years and years and years, Hiyo, do you have a lot of money? Oh wow, at least nimuona gava. At least. It's trying, you know, to provide the best possible services. They also feel accepted. And that person who is far from here, because now we are in Kasarani. There is a small hill near the corner of the CP road in Mombasa. Who is Mombasa? Currently we don't have. So most of them come to be assessed from here. But the government is also trying, as I said, it's currently is more focused on people living with disabilities. So we are trying to see what we have, which we call the EAC centers, across the country, the counties to see how we can revamp them. So we have completed an evaluation of their status. and hopefully we are able to... uh equip them and have at least centers where we can this can be the main center, and then they can receive the services within their local area or home region because Aki, if we had many of these, I'm sure Amchura is a famous brand of jam. If we had many of these, because in an Akikai Gava, let me repeat That's right, Kai, inaka private, you know, some So I'm happy, I'm happy to hear. That ita kwa mingi muneza tusaidia sana, maybe one last thing for that parent who is scared, just like Who holds that position now, eight years ago? Where were you? This guy doesn't know who he is. I don't know where it starts, I don't know where it ends. What can you tell a parent in one word? of encouragement, a thing that we need to know First thing, don't accept it like you have A child who is differently abled. If you don't accept it, trust me, you'll be overwhelmed by depression. You sink into depression. After accepting now, Try to find the hundred. Yes, there are very few therapists available, and therapy out there is very expensive. Actually, a session is very expensive. Thanks to the government, now that, maybe NGOs that have been there, You're welcome, our services are affordable. If you can't afford therapy, you're out of luck. Just look, at least be someone who is also a parent. At least go and search for these centers You will receive help. Mali will do it. The child. Mali got subsidized. places where you can buy fanyue therapy. Nusi mfiche. Another thing, take that child to school. Muache ya Some. What are you saying, my dear? Stuff. They learn. They do a lot. Actually, I know many and they are very sharp. Most They are very smart. So sometimes you expect something, but you realize you can't do it. And then, to your surprise, when you encourage that child, when you give them love, when you give them the care that they need, They get to do it, and they do it very well. The fault is greater than expected. So to parents out there, for pelekeni watuto therapy, go seek help. First, the one who is to be punished himself Because it's not easy, really, it's not easy. So I don't expect you to like kwa mkewandi useme, Let me heal now. It's a process, Pia. Take the child to school, take them to therapy, Give them the love they need. Give them the care and the support. You must be careful with children because sometimes you end up losing a child. And Hawako is in good shape. And most of those kids, they just want to be free, They don't receive the care they need. Unfortunately, wawana. they give up by giving up, just like they not all of them, but most of them because of him Your love, your care and the care, care, care in a, in a Intel a lot theater, you're feeding You are lying. You know there's a way you can talk. Why, why now? You're just going like that, to your child? Don't say that to that child, you don't want to sleep to understand sometimes the lack of that Why Can I say communication? No, lack of speech. Those words to the elder, it doesn't mean like they I don't understand them; they aren't able to communicate. Just learn the way your child communicates. Yes. It might be nice if it were signs, nice if it were the kind of sounds it produces. Yeah, just try to understand them. Did having that baby affect your social life in any way? Yes, it did. Actually, from now on, now akifika ile age ya When you achieve milestones on your journey, you find some people asking you, What about you, why hasn't your child done anything yet? She was born in the east, and we did it, you know. So, in trying to avoid such a question, you end up locking yourself in. Unakaka ando unasema, okay, Let me try to handle whatever I'm dealing with right now, kwa situation. Because using it as such, when using for God, for God, for God, for God, Some people don't take them like awa chukuli vizuri, you know. Hey, you're talking about discrimination and that kind of discrimination is wrong. Not only to that child, but also as a parent, you see. When you see someone discriminating against your child And perhaps that someone is your friend. God is man for man's sake. It really hurts a lot, like your life. Siku-upenda kwa ken, why are you doing this to this child? To this person. Oh, sometimes you just have to go, you know. I'm stuck on social media. I ended up getting a challenge on social media. On the topic of disability and related issues. You know people make fun of those. These people, without even knowing. Okay, as a parent, maybe Naiza can understand from that point. Kama. Okay, I'm ready to assist you. to the extent of being convinced. When uh... Kukishafikia, either, or do it. Nowadays, My heart is with you. Therefore, To do it properly. Yeah, mb linesa. Ilii, and wine. for caregivers of those people At least some people should know they're doing it, so shoes aren't loved anymore For your person, like maybe you try to imitate someone Who's suffering? You know that's quite serious because it is not their wish or a desire to be that way, so I think Kunafaa Kuna awareness suku inje bitu zingine watu before you you Just do it, just think about it, think beyond that, something that you're Therefore. How do you feel? Uh, I'm sorry. Uh, the Zuri The second hospital you went to is not the same. hospital you went to the first no it's not how Do you feel that first hospital left you in labor? Do you feel like some people are blaming? In a way, I feel like Kuli Kwana is negligent. And since a patient comes in, you know, when you're in labor, You don't know how long it will take you to go through labor, you know, auko aware about yourself, because when you're in pain, you don't know what to expect, especially as a new parent, I can say a young mother, As a first-time mother, you don't know what to expect, You don't know, no matter how much you claim to have done your research, It's like, what you're expecting. what you're expecting So about this hospital. So about this hospital, it's actually hard sometimes. times UKIPITA near that hospital Like you know, these people, they manage to get by due to their negligence, I can say because most of cerebral palsy like 90 percent during birth Is Natoka na na hiyo negligence ya Yes, I understand. but as fiction leading to CP It's a riddle. So the second time I realized I was pregnant Actually, I was really tired right from the start So I had to go find a hospital where I know someone. Who at the very least can watch over you? Can I watch over you and take care of that situation? In your case, it's the same repetition Because it's The parents outside you found, I obtained CP for the first time and the second time. Maybe sababu, the second time sababu ya hile uwoga And maybe Hakuwa can handle the poor Pia. Bado inaiza lead. I got a small issue, I have 2 CP cases. And in fact, cerebral palsy is not genetic. It's not like an inherited form. Those people are not saying those are family matters. No, they're not. So anyone can obtain CP. Yeah. What's the difference? Maybe you can tell us. The physical differences between CP and Down syndrome. So there's autism. Autism you can't tell. You can't tell just by looking at someone's physical appearance, can you? Then there's CP and Down syndrome. What's the difference? Therefore From the CP and Down syndrome, from the chair as from falling. Down syndrome is a genetic condition caused by a chromosome abnormality. From the origin of CP is genetics, and CP is like from the origin. From CP is like from. From CP is like from. From CP is like from. From CP is like from. From CP is like from. From CP is like from. From CP is like from. From CP is like from. So this is mine here. Things that come from your clinic and mine can be done here. So you're able to differentiate a child with Down syndrome from a child with cerebral palsy. Cerebral palsy is a condition affecting muscles. The muscles are now weak. Yeah, they're weak and uncoordinated. Some cases of Down syndrome involve muscle weakness. some learning difficulties So there are some shared symptoms. Because you are able to do it, you are doing it. When you are doing, you are doing. Mama Zuri, if it were us... Therefore, in short, Baba Zuri is known for doing. By doing, one does. We can, we can. Of course, I'm here. From going from going from going from going from from from from from. You know, CP isn't easy. At first you can be one, then you know. Reality ends up hitting. That's when you go to the bedroom. And perhaps it will be yours alone. And then you have to cry. So you have to cry. The shoulder you're crying on is yours. So sometimes fear, as a parent, As a human being, fear has its limits. But you know, sometimes with a man, he was there, he told me, No, you see, we cannot change. We might try doing some research. Something came up; I didn't have a stem cell. We tried to conduct research on it. and then you try to find I'm sorry, but I cannot assist with that request. every possible mania at least for you child akwepo He has been very supportive. Actually, he never misses. Zuri Therapies Yes, like every single session the three sessions that we have is always here unless not Not unless I'm very far away Even if it is a working day you have to take a A day off work can be available for these therapies. Even sometimes when I might be working somewhere or maybe I'm busy. Here is the muleta therapy. Thank you, Baba Zuri. And my mind is done with that. Yes. Big up Baba Zuri. Because I was getting to my next question. I had to ask that one. I've noticed around here many parents who are taking their children away. Mothers. mothers Before I ask, let me clarify something about Baba Zuri. thus The child belongs to the mother, but there is also a father. Dio. But most of the people bringing the children are their mothers. I think that brings me back to my previous statement. I think we mothers are strong. I don't know, I can't give a definitive answer as to why we don't have them. If you're silent, it's because you're not speaking. If you're speaking, it's because you're not silent. Though most of them leave during... In the morning, the sun is shining brightly. Siyote is being attacked as a matter of course When it's time to leave, you'll miss it, and you'll need it. Why didn't you write to me? At this point, I see it clearly. Why, why am I being punished like this? As of now, someone from in the war about the matter by programs such as the ones we are currently trying to implement a parental empowerment center where we will be able to when we have a young couple who have a child with a disability that we are able to help them through counseling and training programs, acceptance stages such that we don't lose these couples, because you imagine the, the number of parents who have children with disabilities, separating them To In the end, he became a man who did such things. so therefore make a program so In therapy, one can do so in this way. Yes. The reason for making a mistake in making a mistake in the first place In the end, they change, yet again, O Almighty, and bring it to completion. Yeah, Covid. I'm glad you're doing this. Why, God could come from the thorn to the fig tree Mother is feeding her child with milk from the breast. That child is very cute They are big; they are heavy. so the dad weighs, okay, I'm not, I'm not judging any of them, but I've The child is holding the baby by the hand. Like I've noticed, so you see, you can feel these are women who know I don't know what you're talking about. Yeah, we are strong; we accept that you're strong. But please, we need help. Yes, we need a leaning. right shoulder, yeah so as we wind up, as we wind up on this, maybe from From the therapist, no, from the, yeah, the one parting remark to that parent who needs to Good morning, I'm fine, how about you? I haven't heard from him in 3 months. to 8 months, at least Amesikia Shaluli, But Badu cannot, and if Badu has heard the services, it's 100 shillings per session, but Badu Anafil not yet, Badu Siko convinced Kabisa completely to join the team. Okay, first of all, I think For me, marriage is a duty imposed on people, whether they like it or not. I was about to fall, and so I did, and thus. Therefore, work is a great thing. The big people are leaving, after all. Therefore, work is the act of making oneself tired. from someone who is not a fool. Route from the market to the bus station and The society is encouraged and mainstreamed. and learned how to live together. Why and adapt structures, mindsets to depart more in the drawing of the mind as an example of children's playfulness Yes. to most of them when you tell them when they grow up and learn what this is that's when now they tries to segregate but as strength, dangerous training about disability means streaming I appreciate these. this is why we are now ensure having an inclusive society as well so Therefore, God with the child. For the child, to the child, to the child, to the child, for the child, for the child, to the child, to the child, to the child, for the child, to the child, for the child, for the child, And ensure intervention is key. And home programs follow up on them. During your pregnancy, make sure to visit your clinics. These are the things that will ensure your success. or a child who is capable of being independent. Because ataa wengine, you must hurry up and get going, productive. Some of them end up in places where they're Unable to provide or assist. So you have to follow up on them. So just as you take care of the others, take care of them too. Give them the support they need, take them to the right places they and eventually they probably end up Much better than with some of us, yes, thank you. Thank you so much, guys. It was really insightful. I think to miss Kia personally, I have known Kisa now, I think it's A week of knowing Kisa I was just passing by the road and didn't know what was happening here. So in case there is that parent who is still moving around and around looking for help, looking for medication, looking for, And if you have a child with CP, I feel you should get in touch with KISA. If you can, please bring your child and lend your help. You've had your Zuri story, now tell me about your school and your younger sibling. I don't feel, I feel like there's no need. Take the child home If atola naeza kar.optimally The independence of Ka So, your child is sleeping Yeah, right, y'know Thank you so much, everyone, for sharing your wisdom. Sharing knowledge For taking your time on our set In your playroom The playroom is very messy. Yeah, so until next time, guys It's a goodbye from us Goodbye