The monotropic mind theory of autism might help you explain autism to your friends and family. Discovering monotropism was like finding out I am autistic all over again!
Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire: https://osf.io/ft73y/
00:00 What is autism? 03:09 How to explain it? 04:26 Why do we hate Eye Contact? Language stuff 10:50 Why do we have Sensory Differences? 12:55 Why do we Stim? 15:13 Why do we have Special Interests? 18:20 Why do we need Routine and Control? 20:57 Why do we think Literally? 22:40 Why do we get Stuck and HATE interruptions? 24:30 Why Pathological Demand Avoidance? 26:28 Why do we have Intense Relationships? 29:05 Why do we have Dyspraxia? 30:25 Why do we have Meltdowns, Shutdowns and burnout? 33:00 Why are we all so Different?
*These are affiliate links. The channel will receive a small commission if you buy anything on Amazon after clicking through with this link. There's no extra cost to you; any money will go towards putting out more content. I'd love to post twice a week and put more time into research for these videos. Thank you so much - I really appreciate every like and comment!
DISCLAIMER: I am a second-year psychology student and a late-diagnosed #actuallyautistic individual. I am not a qualified healthcare professional.
What even is autism anyway? Have you ever been asked that by somebody in your life? What is autism?
How would you even go about explaining that? It just feels like autism is so much. I feel like
I would need an hour. Would you get up the DSM-5 criteria and be like, this is me? I don't really
think so. I really used to struggle if I was asked that question and then I was on a Facebook group
for autistic women and somebody mentioned the word monotropism and so I looked it up. It was
like learning about autism all over again from the beginning. It was like crazy aha moment of
this is it. Monotropism is a theory of autism that attempts to explain how the autistic mind works
and what being autistic really means for how you experience the world around you. There has been
some very recent research found an autism diagnosis to be very consistent with fitting this kind of
monotropic profile and it also suggests that ADHDers are more monotropic than neurotypical people.
Slightly less so than autistic people but they're definitely, you know, on the monotropic spectrum
which is really interesting. So if you're an ADHDer these might apply to you as well. In this video I'm
going to talk about 12 different ways that monotropism can explain the autistic experience
and link, you know, all these weird little random threads that seem completely unconnected like
how the hell does sensory differences and feeling like things are a bit stinky sometimes link into
the fact that you have really intense interests. If you feel like this theory of autism resonates
with you I think it can be a really lovely way to explain autism to other people because I feel like
it's really easy to understand when you read about monotropism how this could be disabling, how this
is a disability, how it can be debilitating particularly in this society and in the way
we expect people to operate and to behave but then it also makes sense as like a natural
variation in human minds and both of those things I think can be true at the same time. Before I
start I want to emphasize that monotropism is not new even though it's been, you know, being a bit
viral on TikTok at the moment it wasn't created last week. The word monotropism was proposed in
1991 and the original paper describing the theory of monotropism was published in 2005.
That's a long time. I get comments all the time on particularly my videos related to PDA, the
pathological demand avoidance profile of autism, from people who seem to have like slipped on a
banana peel and fallen into my content and they're always like everyone's coming up with a new illness
every week these days and it's like okay autism isn't an illness and also no psychologists have
been talking about PDA since 1980. Actually that's 43 years so no no no no no. This paper in 2005
was called Attention, Monotropism and the Diagnostic Criteria for Autism and excitingly
all three of the authors of this paper were autistic one of whom was an autistic woman
called Diana Murray and she saw traits of autism in herself at the time but it was only later in
life she finally accepted that she could use the autism label because she originally felt like she
wasn't autistic enough. I feel like that's an experience a lot of us can relate to. So what is
it? Monotropism can be explained simply as the tendency for our interests or just whatever we
happen to be focused on in a given moment to pull us in more strongly than it would for most people.
Every person has a limited amount of attention available to them at any given moment. Monotropism
suggests that autistic brains tend to prefer to focus on fewer things at any given time and at a
higher intensity. We get sucked into attention tunnels and once we get sucked into them it can
be hard to pull ourselves out of them and move on to something else. Does that sound familiar at all
because it sounds very familiar to me. Depending on how much you like metaphors you could also
describe monotropism using a metaphor of light. So if we imagine a metaphorical room and we imagine
a neurotypical person walks into that room and they've got a more polytropic mind they may stand
in the doorway and see the entire room lit by like a soft overhead light. Every object in the room
appears to be lit somewhat evenly and then by comparison and the autistic individual the
monotropic individual would be viewing the room through a torch beam and seeing you know fewer
objects at a time through a much more intense and concentrated light. But how does this explain
everything about autism? Number one social differences. So in order to receive an autism
diagnosis you must have what the DSM-5 calls social deficits. If you imagine that autistic
people like to process one channel of information at a time it might kind of be easy to see why
socializing would be more difficult for us and why we would have social differences. In my video
about masking and what masking feels like from the inside which is one of my first videos I ever made
I spoke about how I just feel like I'm doing a juggling act. I've got to be looking at a person,
I've got to be monitoring whether I'm making enough eye contact with them, assessing how
much eye contact they're making with me and then kind of trying to match that. I'm looking at their
facial expression which is moving very quickly and obviously involves a lot of different features
moving and doing all sorts of different things I'm going to try and decode that meaning. They're
speaking I've got to focus on what they're saying, I've got to focus on their tone and what that
might mean. Obviously their body language, if there's maybe more than one person speaking then
you've got multiple people to focus on and then obviously the background noise and all the other
things that's going on in the world as well and then you've also got to think about yourself so
am I reacting correctly? What is my facial expression doing? Do I look sincere? Do I look
like I'm interested in what they're saying? They're saying something sad, do I look sad enough? You
know all that kind of thing. What am I doing with my body language? Does it match what they're doing?
Do I want to be doing the same thing as them? Is that weird? Then you have to think about what
you're going to say next and be ready and then when do I speak and I've got something to say
should I interrupt? Is it going to be rude? I'm not speaking enough? I need to be speaking more?
There is a lot to do and even if you intellectually understand social rules it's still kind of
difficult to perform them on the spot. Everything's happening very rapidly you've got to react very
quickly and you can see how this would be exhausting for somebody who really prefers
having one channel of information or fewer channels of information coming in at a time.
It's kind of an onslaught of stuff and so monotopism would explain why autistic people often
say they can hear what someone's saying more they can concentrate more if they're not making direct
eye contact because then you're reducing the number of you know channels of information that
are coming in you're not getting all this information from a person's face you can stare
at a fixed object and then your brain is better able to process what's being said to you. I've
shared so many times this story because I used to when I first was looking into autism I was like
I don't know I don't know and then I remember the story where I was yelled at by a teacher
designing technology very important subject no I'm sure it's important to some people he wanted
us to make eye contact with him and he made it very clear at the start of the lesson you must
not look at anywhere other than at me so I was very conscious of that and I was like look at him
look at him look at him and then at some point he turns around and shouts at me your eye contact is
appalling you're going to stand up for the next half an hour so I had to stand up. I was in shock
because I was like I'm pretty sure I was staring at you the whole time but I kept thinking I need
to be looking at him I need to be looking at him which probably suggests that my eyes were wandering
and I was looking out the window and I was looking at the equipment that he was talking about and I
wasn't staring him down the entire time which is weird like why did he even want that I don't know
no matter how I ever come across socially when I'm you know trying really hard and masking sometimes
I think I do come across well people say that I come across well it never feels like I'm coming
across well it never feels intuitive as I say it always feels like juggling like fragmented like I
can't really process how well the interaction is going so I think this is why I've kind of throughout
my life despite the fact that I like people I'm interested in psychology I'm interested in people
I've often avoided socializing like on hidden toilet cubicles or ran to the library so I don't
have to speak to people to be on my own to get a bit of a break because I think it's mentally
exhausting this also links to the language delays that are sometimes seen in autism. Autism is
sometimes mistaken for deafness and if you look on the childhood traits of autism page on the NHS
website very first trait is not responding to their own name it could be that for some monotropic
individuals language itself is actually quite difficult to pick up maybe you're just hearing it
as like individual sounds and are not quite able to piece it together as words and sentences as
easily as other people are although I don't think I had any sort of language delay and it wasn't
something my parents were concerned about there are lots of clips of me ignoring seemingly ignoring
my mum in a way my son who is not autistic he just wouldn't do he would always respond to the
kind of things that she's asking me and I'm like in the middle of playing she'll ask me about what
I'm doing or she'll ask me to show her something or say something and I'll just ignore it say uh-oh
show me your Teletubby shirt on the film mic where's your Teletubby shirt
even as old as five six years old I'm still doing that to some extent either appears like I haven't
heard them or like I'm really being rude so the son of Diana Murray one of the original authors
of this monotropic paper from 2005 he was part of the recent research on monotropism he's still you
know super vocal about his mother's work he was also diagnosed himself at the age of 32 and he
kind of describes himself as having a more female presentation of autism which I think is how you
describe most members of my family as well even though I'm the only autistic female he wrote a
piece for the British Psychological Society and in that article he says if our attention is elsewhere
auditory input might register as an unwelcome interruption we would much rather ignore or it
might not register at all and then when talking about learning language and it discusses a child
who's just been taught the word cat the 2005 paper says the following once the infant has
learnt the word cat the adult possesses a tool for manipulating the infant's interest system
disruption of the attention tunnel is a painful experience language may suddenly become unattractive
for a deeply monotropic infant so in this context when it says interest system it's just kind of
essentially talking about what the child is paying attention to in that given moment so as a child if
you were very locked into what you were doing you may just kind of not heard your parents you may
have been kind of under sensitive to that sound in the given moment or you may have been overly
sensitive and heard them you know calling your name and you recognize your name you're like oh
this is trying to get my attention and that feels painful to you to kind of rip yourself away from
the thing that you're currently engrossed in so you ignore them because you kind of you know want
that to go away and it's not something you want to engage with it has negative associations for you
in this way you can kind of see how being hyper and hypo sensitive to sensory stimuli can cause
social differences it's already starting to all link together but number two let's talk about
sensory differences a bit more deeply so why does some autistic people feel like they're over
sensitive to brightness smell taste textures whether that's textures of food or textures of
clothing and then the opposite side you have some people who feel like they're under sensitive and
say that they have a very high tolerance for pain and things like that and why does some of us feel
like we're both depending on the day depending on the context sometimes you do hear it kind of
spoken about as if autistic people will either be overly or they'll be under sensitive to sensory
things but i don't think it's always that simple in black and white if i was trying to concentrate
on something deeply at my computer and someone started blasting really loud music at me all of
a sudden out of nowhere that would be horrible but if i myself put on my headphones and play
some loud music or i go to a concert of music i like and have chosen to hear then i'm quite happy
to hear that loud music i suppose in the context of the concert i have chosen for that to be my
focus that is where i am and that is where i want to be if someone's blasting music while i'm trying
to focus on something else then they're trying to yank my brain in a different direction and that's
not very monotropism friendly so monotropism explains our sensory experience being more
intense because when monotropic people are focused on something we use more of our mental resources
on that thing so our experience of that thing might just be more and that might explain why
the world is brighter louder smellier just a bit of an onslaught sometimes for autistic people
and adhd as well but also when you're inside the attention tunnel as with the language example you
may miss things outside of it they may just go over your head i ignore hunger all the time i do
eat enough food but i often do need reminding and sometimes autistic people are explained as having
poor interoception so they're not necessarily able to sense sensations like hunger within their own
body i'm hungry right now i can tell if i try and zone into it that i am hungry right now i can feel
that sensation but i can block it out because i'm really excited about talking to you about
monotropism because this has certainly become my interest for the last few weeks and my family are
sick of hearing about it stimming how does monotropism explain stimming if you don't know
stimming is one of the things that the dsm-5 the diagnostic criteria calls restrictive and
repetitive behaviors in autism we can flap our hands i did a lot as a child rock back and forth
that's a good time we might use fidget toys we might pinch bits of our skin or bits of clothing
or tags on clothing or mess with our hair or twiddle our fingers or do like finger flicking
you know just like little repetitive movements that we do why do we do this why do we do this
because it's nice but why is it nice for me stimming has always pretty much been about
concentration and about heightening my concentration it's always been a super immersive i've described
it as being like a meditative experience for me i can get completely sucked into my own world it
like enhances this ability that i have to hyper focus on things so i would usually stim while
playing as a child i would flap my dolls and like rock back and forth and then like play out a story
of like what my dolls were doing in my head rather than actually moving the dolls because that
allowed me to be more in the play it seems like it was the same experience for temple grandin when
she was a child and she was quoted in the original monotropism paper as a child she would be intensely
preoccupied with the movement of the spinning coin i saw nothing or heard nothing people around me
were transparent that's like such a beautiful way of describing it yeah it's like the world
disappears and the world in my head or whatever i'm focusing on at the time comes alive and stimming
can also be a comforting thing maybe because it enhances your concentration helps you to go into
a kind of like natural state i pinch my neck all the time speak about it a lot so i must get on my
necks a bit just call it i think and for me that's that's about comfort and i think monotropism can
kind of explain why the movements are so repetitive within stimming like why do we do the same thing
again and again in a world where there's so much chaos and you don't know what's going to happen
next i'm like oh there's an ice cream van over there it's you know it's nice to kind of know
what you're going to feel next and then maybe because we get stuck on one channel we get stuck
on a loop of doing that same thing and it's just soothing and peaceful and nice the sensations flow
and we know exactly what sensation to expect next these are people who live in a world in which
sudden experiences repeatedly occur so in that world anything that's predictable is comforting
number four we're going to talk about special interests and hyper focus which should probably
be quite obvious how this fits under the umbrella of monotropism according to a 2011 study 75 to 95
percent of autistic people report having a special interest as i've said so many times in my videos
related to special interests an autistic special interest is not an autistic special interest
because of the particular category of interest you know like it doesn't have to be transport
it can be anything at all what is important is the intensity of focus that is what makes it
an autistic special interest it's like your passion your level of devotion your almost like
uncontrollable need to be doing that thing all the time and then while you're doing that thing
the intensity of focus the way you get sucked into this tunnel the world around you becomes
somewhat transparent and you're just in it most of the time it's kind of an antidote to all the
things that are difficult about being an autistic person in the world at least that's kind of how
i experience it i need my interests in order to feel okay and that's one of the reasons why school
is so painful because you're kind of ripped away from doing that and pushed towards all of the
things that you find difficult instead on a daily basis my interests and my hobbies and my projects
have always been the best thing about being alive to me i would say aside from obviously all the
people that i love as well but in order to be happy on a day-to-day basis i need them and this
i think explains time blindness as well because like your sense of time slips away the world
around you falls away and it is often easier to create order and predictability within a special
interest again it can be deeply upsetting when you're interrupted from working on these interests
and people may not understand why you have such a big reaction to this oh my gosh the rage i would
feel when i was video editing at age 13 when my mum would tell me that dinner was ready the dinner
that she'd very kindly prepared for me i would be like i'm coming and then like 10 minutes later i'd
still be there and then they'd be calling again and i would have no idea that 10 minutes had passed
my mum would make me little cups of tea all the time and the amount of cups of tea that went cold
probably 80% that she made for me i can't there's one of the reasons why i really struggle to stay
hydrated because i just can't i can't remember to take a sip of water while i'm in what i'm doing
so i think that's one of the major things that really separates an autistic special interest
from a neurotypical hobby and the intensity and devotion that we pour into these interests
does kind of link to perfectionism i've spoken about this a lot again in my pda content it's
one of the theories for why some people fit this pathological demand avoidance profile of autism
but even just autistic people in general from as early as the 1940s have been seen in research to
be very perfectionist to not really be able to handle anything going wrong within their interests
or outside of their interests many children with autism are extremely distressed at any experience
of failure and hate to be corrected if they make an error and this makes sense to me if you imagine
like if you deeply focus on something and the whole world around you has disappeared that thing
is kind of your world at least in that moment and maybe the stakes are higher the experience of you
know being in doing that thing is heightened and therefore when something goes wrong the experience
of that and the emotions associated with that are also heightened okay so number five i'm going to
talk about insistence on sameness and also need to be in control so just as stimming under the
monotropic lens kind of makes sense it's like you know predictable controllable input the insistence
on sameness that is really hard to say and need for routine and structure are kind of similar you
know trying to find some order in a chaotic world it's a world that's always trying to yank your
brain out of what it's doing and in a different direction without your permission so you may feel
quite strongly about wanting to stay on a fixed safe path that you trust a lot of autistic people
prefer structure and routine that's kind of like a stereotype of autism at this stage it's one of
the accommodations that people make once someone has an autism diagnosis to make sure they know
exactly what's going to happen within their day i have a family member who throughout as long as i
have known them my whole life they have to go to the shop at the same time every day without fail
whether or not they need anything they will make sure they find something that they need
some reason to go to the shop they just absolutely must go and i can definitely relate to this
feeling there are sometimes things where i've got it fixed in my mind that i'm doing a certain thing
and i cannot move on with my day unless those expectations that i've set up for myself have
been met otherwise it's kind of deeply upsetting you can end up like crying and shaking in a corner
and being like oh my god why is this such a big deal but for some reason my mind latched on to
things being a certain way and they're not that way and i can't handle it there's a really great
bbc program with chris packham who was diagnosed as autistic and he kind of spoke to a diverse
group of autistic people and the one guy on there he had to absolutely had to every day do
things in his routine at exactly the same time it was kind of like painful to watch to the minute
everything needed to be perfect and then obviously on the other side of it you have autistic people
many people who fit the pda profile as i do also people who have a diagnosis of adhd and autism
which i do who can't deal with routines and i feel like strangely it is very similar this need
to control like every second of your day and know exactly what's happening on your schedule at every
moment and then also this need to not be controlled by a schedule and have complete control over what
you do every single given moment it all kind of comes back to this feeling of needing to know
that to the best of your ability you're going to be safe from this feeling of being pulled out of
what you're doing and have something unexpected happen to you as fergus murray states much of
autistic behavior can be seen as attempts to restore some kind of equilibrium okay so number
six this is kind of another social one it's literal thinking how can monotrophism explain
the fact that some autistic people at least as children they may grow up to understand it but
they may not be able to understand sarcasm or they may interpret phrases like break a leg literally
and not know what on earth someone's going on about but as we get older even if we do understand
these phrases and we don't interpret them literally anymore often we interpret them
literally first and like maybe picture what someone said literally and then we kind of
have to like process it even if it's quite quick we still have like a little extra step i feel
of processing before we can be like oh that's what they mean okay for me if somebody says
i always imagine someone with a broom hitting a bush i remember sometimes there were music videos
i can think of i don't know does riptide do it the music video for riptide and also a six foot
seven foot by law wayne the music video takes all the lines literally and i was just like this is
this is hilarious this is a masterpiece and i think there was something about that that was
really appealing to my brain it's always been a joke thing between me and my husband he knows i
don't like idioms and when he says them to me it's like unnerving i get kind of like an irritated
response i'm like oh why do people say that it's so silly it's so stupid like almost a bit snobbish
about them and so he'll often try and slot them into conversation it's become like a joke thing
maybe just because my brain doesn't like them it takes an extra processing step maybe and
monotropism kind of explains that the autistic mind likes one thing to follow another in a more
direct way so we kind of prefer things to be more literal and to the point again like needing one
thing to follow another and be neat it's all kind of linking back to the perfectionism stuff number
seven autistic inertia and interruptions so when we talk about having difficulties with executive
dysfunction which is kind of like our ability to plan what we're going to do and then actually
follow through and execute that task when we're talking about that with autism we're often talking
about autistic inertia we could really struggle with getting started on tasks and kind of just sit
and stare blankly into space and be like i cannot move my body i really struggle with getting out of
bed i always have done my whole life and then also getting stuck once you do get started and then
also struggling to then stop and pull yourself out of that and how that can feel very i don't know
rude just in general in a day there's a lot of expectations to like pivot and change and be
and that is kind of mentally exhausting for us i think it's as if we've loaded a cart to the brim
with thoughts and feelings and then we suddenly have to steer it round a sharp corner in my most
recent signs of pda video like how pda feels from the inside video i spoke about how things like
getting out of bed to me can feel like facing fears it can feel like ripping a plaster off is what i
compared it to and then i also compared it to like skydiving and having to push yourself to jump out
of an aeroplane even though it's terrifying like it's so not intuitive i love this quote from the
2005 paper to a person in an attention tunnel every unanticipated change is abrupt and is truly
if briefly catastrophic a complete disconnect from the previous safe state a plunge into a meaningless
blizzard of sensations it's kind of like our ability to hyper focus to get into these tunnels
these deep flow states is our greatest strength and our greatest weakness okay so number eight
in general i feel like monotropism can explain pathological demand avoidance that profile of
autism and just demand avoidance in general the original paper on monotropism quotes another paper
from 1943 one child they were observing was highly satisfied unless someone made a persistent attempt
to interfere with his self-chosen actions any demand like even a self-imposed demand which do
tend to affect pdas as well me thinking to myself i need to go and make the bed that is an interruption
to wherever you know your attention is focused in that given moment that is a requirement that you
pull yourself out of doing that which is a painful experience and go and do this other thing over here
which might be why a lot of us have either internalized or externalized negative reactions
to other people asking us to do things even if those things seem relatively small so it feels
like demand avoidance is a protection mechanism pda is often described as an anxiety-driven need
to remain in control and there are studies to suggest it is linked to a dislike of uncertainty
so again it comes back to that need to have autonomy over what you're doing in any given
moment that need to feel a sense of like safety like i am not going to be ripped away from doing
this someone asking you to do something is almost always them asking you to either in the moment or
in the future stop what you're doing and go and do something else so it's always asking you to pivot
and that can feel intrusive and it might be similarly as jarring as hearing a sudden
sound i described in my pda video how to me the feeling of a small demand like somebody saying
oh could i please squeeze past you in the supermarket gives me a very similar feeling
to hearing somebody whistling right behind me while i'm walking down the street it's a similar
feeling of like prickling under my skin and kind of like an irritation sensation i probably would
both of those things are interruptions monotropic individuals just may feel safest whenever we feel
like we have complete control over what is happening to us our minds are doing what every
mind likes to do and they're trying to minimize the pain that we experience on a day-to-day basis
and that's why we're avoiding demands number nine i want to talk a bit about intense relationships
with other people and the fact that many autistic people you particularly hear it from autistic
women but i'm sure it has happened for many other people as well they have a misdiagnosis
of borderline personality disorder sometimes people have a diagnosis of both and feel like
both resonate with them but for some people it blocks them off from you know looking further
and getting that diagnosis of autism which would explain more different you know facets of their
experience so you can maybe see why some autistic people would have very intense relationships if
you think about the torch beam you could become very deeply focused on infatuated with a particular
person i think we often find that like as well as having special interests we have special people
in our lives people who we are very loyal to people who we love unconditionally and very deeply
we maybe just grow very strong attachments to particular people and maybe sometimes more quickly
than other people would on the other hand you can also see how monotropism might make it very
difficult for you to maintain friendships and why your friendships may slip away from you because
you're spending so much time in this tunnel focused on your interests and like the world
slips away and everyone becomes transparent and you're not maybe always the best at replying to
messages for me the best friendships that i've kept hold of are the ones that really don't
require that much maintenance often they're friendships with other people who are neurodivergent
as well but not always i can't respond to your message every day but that doesn't mean i don't
love you unconditionally and i don't think you're like one of the most amazing things on this earth
it does feel like the torch beam i can't spread myself very thinly with relationships as a child
you know it would be like one or two very special friends it was my cousin for most of my life and
then it has also been the same for romantic relationships for me it can be bad like sometimes
people might not deserve that level of devotion that we're trying to give to them you know and
also it can be really great if you have somebody else who you know really likes you as well it can
slot together and work you can like cool you know we're both committed to this let's go you might be
able to see how this intensity of devotion might be misdiagnosed among like you know other traits
like maybe if you were speaking about autistic meltdowns as well and they were perhaps interpreted
as an anger outburst you can see how maybe those two things together could lead to a misdiagnosis
of borderline personality disorder on the nhs page for borderline personality disorder one of the
traits listed is intense but unstable relationships yeah i mean you can imagine if somebody became very
fixated on somebody quite quickly and then maybe they were rejected obviously a lot of autistic
people we could feel this rejection sensitivity and i suppose if someone is in your tunnel they're
in your torch beam and then they reject you that could be deeply upsetting number 10 how does
monotropism explain dyspraxia from looking into the research it seems like adhders do have some
sort of difficulties with movements more so than neurotypical people but then autistic people have
movement difficulties that are more consistent with a dyspraxia diagnosis if you don't know
what dyspraxia is i'll leave my video where i talk about the traits of dyspraxia but basically
you struggle with movement stuff you struggle with hand-eye coordination you might have found
difficult to ride a bike it also can relate to like moving your mouth and speech delays and
things like that as well that makes sense to me through a monotropic lens because movements and
particularly learning new movements involves coordinating different parts of your body and
making them do different things at the same time and again it's like the socializing thing lots of
different threads of information you imagine like hitting a ball with a bat you've got this ball
rapidly launching at you so you've got to watch that follow that with your eyes and you've also
got to think about your movement and how you're standing and how are you going to hit the ball
and how hard are you going to hit the ball and it's all happening very quickly and it's you know
a juggling act again obviously this isn't to say that autistic people can never be good at movements
i think it can be more difficult for us to learn movements and it will be more so for some people
than others for me learning to ride a bike was near impossible it was difficult for me to learn
how to drive as well took me a bit longer than it did for most people number 11 how does
monotropism explain meltdowns shutdowns burnout just general mental health difficulties but as we
kind of explained it's jarring it's painful to be moved out of this attention tunnel and if you
think about how a lot of autistic people are expected to live our lives we're expected to
live our lives often on other people's schedules being pulled from task to task to task whether
it's in school or it's in a job or even just in a home life like okay now we're going here
bergus murray calls you know each of these different transitions wrenching dislocations
and i think that that is a really good description of it our attention is being knocked off its
natural course again and again and it's really exhausting it makes sense that autistic people
would be more likely to suffer things like depression and anxiety having to exist like
this in a chaotic world there's a page that i really love on monotropism.org and it's about
the monotropic split which was a term that someone called tanya adkin came up with to me this just
encapsulates the experience of being at school and then also like socializing in particular so
well it feels fragmented it feels patchy the fact that we're often required to do this mental
gymnastics the splitting in order to fit into a polytropic world is exhausting eventually after
a day of trying to push through can lead to a meltdown tanya adkin kind of describes a shutdown
as an internalized version of a meltdown so when you know it's not socially appropriate for me to
have a meltdown right now i can't do this in public i've got to like keep it in and in some
ways that can be worse like meltdowns can be worse for the people in your environment but then
shut down nobody knows nobody knows how bad you're feeling you're internalizing and i think that's
how i spent my school life i very much shrunk into myself the whole time i was there until
basically the end of high school and then when i went to college i started trying to mask more
and trying to push through that which was then even more exhausting and was probably why i then
dropped out which i have a whole video talking about you end up in autistic burnout which can
take a very long time can take years to recover from is when you've consistently just been pushing
yourself past your limits not allowing yourself to do what feels natural and intuitive and making
yourself do what is not natural and not intuitive to you constantly trying to make yourself be
polytropic when that's just not who you are basically i think in order to be happy we have
to be allowed to be monotropic it is who we are we have to be allowed to have this time to deeply
focus on our interests whatever those interests may be obviously as long as they're not hurting
us and hurting anybody else finally number 12 how does monotropism explain the fact that autistic
people are so different from each other there doesn't tend to be like one consistent presentation
of what an autistic person looks like we're all so different but why are we all so different why is it
that when you've met one autistic person you've met one autistic person i mean obviously in general
people are all different and autistic people are people so that comes into it but it makes sense if
you look at it through the lens of we've mostly all got different interests we've mostly all been
exposed to different things as a child we've been for whatever reason drawn to specific things as a
child we've spent a lot of time on those things and maybe less time socializing and less time
building other skills we may have more obvious strengths and weaknesses compared to other people
i think it's a common autistic experience that people might assume was stupid it may be just yeah
because we have very uneven skill sets you know like i was good at writing essays and good with
words but not so good at speaking with words and putting my hand up in class and you know maybe
it's difficult to reconcile like this person who seems like sometimes there's not a lot going on
or they don't always have a lot to offer then goes away and produces this incredible thing in whatever
area they happen to be interested in so yeah never underestimate autistic people there we are there's
the there's the takeaway we've got different interests we've been spending our time for a
whole life doing very different things it's kind of interesting though because thanks to the internet
a lot of us have now you know we're discovering more information about autism and we're developing
a special interest in autism and then speaking to other autistic people and it's like the autistic
community has kind of found a like common special interest in autism that's bringing us all together
it's just just it makes me feel a bit emotional you can apply monotrophism to so many different
areas you know like decision making and difficulties with working memory with like holding
on to different threads of information i think it's an amazing theory it's amazing that it was
created by actual autistic people and probably very telling that oh who who would have thought
it you know the people who actually live in autistic minds might know a thing or two about
autistic minds compared to people who are just looking at a meltdown and watching somebody
rocking and then being like restrictive repetitive you can even potentially explain the
lack of empathy which we know is not a thing it's not inherent to autism that you will have less
empathy but if you're stuck in an attention tunnel people around you might be transparent
you might not notice what's going on you might not be able to read when someone's upset because you
may struggle to juggle the information and read someone's facial expressions you may miss things
you may not notice things you may be distracted it doesn't mean you don't care just this year
another paper came out which fergus mori worked on and this was about the development of the
monotropism questionnaire the mq which hopefully i'll make another video soon where i go through
that questionnaire i haven't done it yet at all because i wanted to save it to do it in a video
so i don't know i don't know how monotropic i am i feel like i very much am but we'll see
subscribe if you'd like to see that video and in the meantime if you're struggling to get yourself
to do things in your life due to demand avoidance or autistic inertia i have this video of 12 tips
hopefully some of these might be able to help you if you're finding yourself getting stuck and also
if you're kind of dealing with feelings of overwhelm and intense emotions as well
thank you so much for watching bye