Meine Not-Operation mit schlechten Nachrichten... | Endometriose

Hi and welcome to a new video of mine. Friends, I'm back again, but I'm back. That's in advance, I'm back and now I'm going to tell you what was going on, where I was, what happened, why I had an emergency surgery, how it goes on, what I learned, all that. And it was just my last video on this topic. So if you haven't seen it, it's best to take a look at it to get a rough idea of what's going on. But I didn't think it would go that fast. In short, the video is about, as I told you, that a large cyst was diagnosed with me at the gynecologist on the ovary and it has to be operated on. The surgery would actually have been in June, at the end of June. And it all turned out differently than I thought. And I want to use this video again to show you that you are not alone. With us influencers, not everything always goes perfectly. We also have bad news, problems or diseases to fight. I also want to be brave and explain a little bit about this direction. But we'll just start now, so watch the last video in case you haven't seen it, otherwise I have to repeat it all over again. We'll just start where it stopped. It stopped where I knew, okay, I'll be operated on in June. That was actually the case at first. I didn't want to think too much and worry about it anymore. I uploaded the video and actually wanted to leave a little peace of mind about what it was about. And then it was like this. Actually, it was pretty much exactly two weeks on Monday. Sascha and I just had dinner and all of a sudden, we were on the couch, I sat back a little bit, did some kind of movement. I had incredibly severe lower body pain. I've never experienced it so badly that I got really sick. I really had to give up almost all the time because it was so painful. At first I thought it would go away again. Maybe it has something to do with the cyst. I was also told at the hospital on the last examination date that if I suddenly have severe pain, I should come by. The cyst can somehow turn around its own axis and around the ovary, which would not be good if it happened. So I had it in the back of my mind, okay, it's probably going to have something to do with it all. But I just thought, no, it's going to go away again. I just hoped it would stop right away. But it didn't stop. It was really constant, such a strong pain. I can hardly breathe anymore, I can hardly move anymore. I somehow had to pull over my legs. It was terrible. We then called the ambulance, because it was just so bad, so painful, and just didn't let it go. Yes, they then said, yes, they're taking me to a certain hospital. But that's not the hospital where I actually had everything, what examinations, also agreed on the operation date. That was another hospital. And I didn't really want that. Then I just asked, or Sascha much more, whether it was possible to go to this hospital, where I had already been in the past, who also simply know my whole story, where the operation was also planned. Because I also knew that they are very, very specialized in gynecology, endometriosis and so on. They said no, there is a no-entry ban or something like that. You can only go there privately. If they have an emergency, if that fits, then we called the hospital in the said hospital, asked if we could come. They said, yes, yes, come quickly. Then we drove off. Sascha was maybe as fast as the rescue would have been. It was so bad, really. I could hardly do anything anymore. My hands and legs started to tingle It was terrible. I was half delirious, because it was so painful. When we arrived, it was already 11 o'clock, 23 o'clock in the evening. The emergency room was still relatively full. You still had to wait for a while. Then there was a doctor who was not a gynecologist, who did not know my story. I think she was from urology or something. I forgot exactly, but I took blood. I think I was so bad with circulation because of the pain, that I collapsed immediately. They took three fat injections. I got more and more dizzy. At some point I was gone. I don't think that's ever happened before. It felt like I had been away for a year or so. I was maybe five to ten seconds away. Then I see my legs held up like this. Then it looks like Sascha and the nurse look at me. I say, where am I? I didn't recognize myself at all. Then the blood transfusion was done. Then I was given direct access, infusion, painkillers, so that everything gets a little better. But it took a while at home. Then the doctor said, she is not really responsible for it and there is unfortunately no doctor in the house anymore. He only has emergency services. They said I should stay at the station overnight. The next day in the morning I will be examined directly. Because of the painkillers and the infusion it went a little better again. I can show you the funny video that Sascha made of me. Look at my hand. As you can see, it went a little better again. In any case, I came to the gym, to the room. The next day, it was already half past one in the night and the next day, at 7 o'clock, I already had an examination appointment with the primary care and an assistant doctor. This was also the doctor who looked at me during the examination. They then looked at you with ultrasound and so on. The doctor then found that there was fluid in the stomach and he also suspected that in addition to the cyst, there is a second cyst somewhere. In any case, he meant that we still have to operate today. Especially with the fluid, they just had to see what was going on. He also meant endometriosis, which the doctor already meant at the time, that everything looks good. What you can see from the outside feels relaxed. Very briefly, endometriosis. Endometriosis has 6-10% of all women. Many do not even know that. Men can also have it. It is a tissue similar to the skin of the uterus, which can even occur everywhere in the body. You can also have it in the lungs. But above all, you have it in the lower body, in the uterus, outside the uterus, in the intestine, in the urethra. It's just a good-looking tissue that's still very swollen, similar to cancer, but it's not cancer and shouldn't be there. In the worst case, it should also cause organ defects. But right there again, I'm not a doctor and it's an individual story. I just want to tell you what I was told and how it was with me. But he meant that everything looks good. He doesn't think there would be more. Then it was like this. I was operated on that day. I was so afraid of it. I've never been operated on in my life. My biggest concern was that people might notice something during the operation. That the anesthesia, that they wake up or are half there and that maybe the first ones don't even notice. As always, my biggest concern was that they would notice something or that something bad would go wrong during the operation. But I'm just such a person that I would give up control to know, okay, you're sleeping now and just have to leave your whole body, your whole health to the doctors. This trust, I was there right before the operation. I cried. It was really bad for my nerves. Then I was picked up. Then I was taken down to the operating rooms. Then I was shaking because I was so excited. Then the nurse asked me if I was cold. And I said, no, I'm just excited. It's all really your own atmosphere. I don't know if you understand what I'm saying. I didn't feel comfortable at all. And they just said I should think of something nice. I thought I should think of the Bahamas. Now the Prosecco is coming from the house and gave me the white stuff. And then I was already dizzy. Then I counted to six and then I was gone. And then I woke up again. I heard, Mrs. Wallner, Mrs. Wallner. And at some point, I think I meant I opened my eyes. I was in this wake-up room. By the way, I looked at the clock. It was a digital clock. It said 6.30 p.m. Then I closed my eyes and looked again. It was 6.50 p.m. You can see how foggy it is and how far away you are. Then I knew, it's only until 7 p.m. Then I could go upstairs because Sascha was still waiting. He was allowed to stay a little longer. I didn't really notice. I just realized, okay, I'm still here, everything will have fit, but not really more from the operation. Then I said a few funny things to Sascha in the room. I was a little off track. Do you have pain? No. No pain, right? Don't look at me like that. It looks like you have pain. I don't. Yes, you do. It's such a gross sound that you can't hear me. Why are you licking there? Because I'm licking something. A little excerpt from that. I was just relieved that the whole thing was done. Of course, I had a stomachache. In general, I can already tell you about the operation. They cut open the navel and then another 1, 2, 3 cuts. But still everything was very minimal invasive. In the past, you just cut open the whole stomach and now they do it really well. In addition to the operation, the stomach is inflated with gas so that the organs are separated and they can work well in general. Because it's such a big cut, they go in through these small cuts and also with a camera. As a result, the stomach is inflated and the gas, I'll tell you, I felt that for so long, so blatantly. My stomach is still really inflated. But in the meantime, the gas then travels so high over the shoulders, the chest and shoulders and you breathe it out. It's painful. If you have this gas, feel free to tell me if it was the same for you. It certainly took me a week and now I still feel a little bit, but it's slowly going away because it really pulls into the muscles and is hidden in the organs. Because it is already released during the operation, but there is still a lot left in the body that has to come out. But somehow I lost the thread today. And then the next day there were visits and then the doctor came, my operating doctor, and he kind of pushed around a bit. Yes, the operation went well, the cyst could be successfully removed. That was very good in advance. But there is definitely still a lot to be done. He said a few things where I also thought what's going on now, why isn't anyone telling me anything? But he didn't want to. He didn't want to talk to me in front of the others. And that was a bit more detailed in retrospect, what he told me. That's why I can understand it now in retrospect, but in that situation I was a little worried what was going on. It was a bad time when I was a little bit in the unknown. And then the day after it was like this. Sascha just visited me and the doctor had time and asked me or us to go to his room. And then he took three quarters of an hour and talked to us and showed us everything. I thought that was really, really cool that I am now an additional insurer. In Austria everything is a bit different. He took his time. And he was really, really competent. I thought it was great that I came to him. We didn't really choose who we would operate on. And we noticed that he has a lot of experience. And now I will tell you what happened. First of all, during the operation he took a lot of pictures which I found so exciting. I really saw everything in my stomach. It was crazy. The organs were really big. And then a lot of brown, a bit like roots, like spider webs, tissue, endometriosis, which was really much, much more pronounced than I thought. He also said that he was surprised. During the examination he didn't think that it was so pronounced. And how deep infiltrating it is, very deep, deeply ingrown endometriosis, because I don't have any symptoms. Sure, I have my normal period pain, but otherwise I don't have any symptoms. And yes, it is especially strong in the intestinal area and also in the urethra. And the thing is that they have already removed the things that were easy to remove during the operation. But not this deep endometriosis because the risk is too high that you just do it I agree with him because he says that it has already happened. You come to a cyst removal and wake up with a side exit. Because the operation went wrong because endometriosis was removed. And what I have is no more a trifle to operate. The cyst and so on, that was a routine intervention. But what is still there is that when you operate there is a risk that something goes wrong. He also described it like this. Endometriosis is a tissue and the thing is when you operate you can't just stop because you notice that it goes so deep. For example in the intestine where I have endometriosis and he removes it and realizes that it goes deeper and deeper. Then it can happen that a hole has to be removed from the intestine. But you can't just stop. You have to do it. The same thing where I also have a lot of endometriosis is generally in the lower pelvis also in the urethra. And there it is the same. How did he say it? I don't want to say anything wrong. I think he meant to go to the hot rod and if it gets too close to the urethra it doesn't flow anymore and in the worst case you have a catheter for a lifetime because the urethra was destroyed. These are all risk factors that you have in a future operation. And that was okay. First of all, I didn't expect that the operation would not be enough. I just hoped that I would be operated on. It's stupid enough that I have to do the operation at all. But that it wasn't the end of the story and above all that the whole thing is associated with risks was a little slap in the face. He gave me really interesting information. For example, there are three disadvantages of endometriosis. First, endometriosis causes pain. For some more, for some less. That's why it's also described as a chameleon disease because it can be very strong. Nevertheless, you have almost no symptoms and sometimes you have really strong symptoms but a very weak feeling I already told you last time. Second, endometriosis can cause severe pregnancies. So just towards infertility. It doesn't have to be. The positive thing that he told me was that the uterus and ovaries looked good and he doesn't believe that the uterus inside has collapsed. But he didn't do a uterus mirroring. You would have to do that again. But from the outside, and what he knows as an experience how it actually looks from the outside it looked good. So that's a good thing. But it can still be that the lower pelvic area has collapsed so that pregnancy is more difficult. And the third disadvantage of endometriosis is that in the worst case it can also affect organs and cause organ failure. For example, as with me, the endometriosis has already swallowed the urethra and in the worst case it leads to kidney failure. Of course, you don't want that either. These are the three negative aspects of endometriosis. Although endometriosis is nothing bad in that sense, it can lead to problems due to this swelling. In addition, endometriosis is not curable. So far not. It's a chronic disease and you never have a guarantee. It can happen again and again that it comes back. It's really a disease that's just there that I suddenly know about and where you just have to think about how to move on. He meant that there are different possibilities. In general, if you remove the endometriosis now, it's something completely different than if you do it in 10 years, because the endometriosis is not that deep yet and therefore the organs have not yet fallen so much and you can simply remove it with less risk and easier. Nevertheless, it is not something that you have to do within half a year. You are really talking about years. He also meant what it looks like with me now. It certainly didn't happen in a few years, but it should have been very, very long. It depends on whether you want to do the operation and then he also brought a few interesting aspects in terms of hormones. There is also a hormone therapy that you can do with endometriosis. Many people also take the pill that simply dampens the endometriosis a bit, or you can only take gestagen, which then causes depressive moods, libido loss and so on. This also has many negative aspects and in terms of pregnancy, this is also a topic that he talked to us about, because a pregnancy can also slow down endometriosis. I wasn't aware of that at all if it is possible to get pregnant at all. That's the question, because if you already have a strong feeling, it may be difficult to get pregnant. But if that works, it can also be endometriosis. I found that really exciting. We got a lot of information about it. There was a lot at first. Just the feeling alone. Now we just have to think about how to go on. I'll do that for myself now and inform myself a bit. I would be really happy if you have any suggestions for me. I think the exchange is also very good. And yes, that happened. That was my story. I was really knocked out of time. I would not have thought that I would feel the gas as long as I feel the narcosis as long as I feel. I'm still out of breath when I do something. I shouldn't do it for a month and don't lift my stomach in general. I have to be very careful now. I'm curious how it will go on. Oh shit, I'm talking way too long. I wanted to say that what happened is actually still harmless compared to other things, although you shouldn't compare. I'm glad it's just that now. Nevertheless, it showed me how important our health is. How much I appreciate it when I can do everything again and I'm just healthy. Really, really awesome. If there are any open questions, feel free to ask them in the comments. As I said, I just wrote down a few things on my phone, I hope you got the most important thing out of it. I hope you appreciate that I share it so openly with you. But I think when it comes to so many women, it's so important to talk about it, not to tabooize it and just to clarify it. On the one hand, hey, the disease exists, many have to fight it, but I'm glad that I don't feel any pain or still don't. I don't know how it will continue, but you really have to appreciate health. I think that's it with the video. I would be happy if you leave me a thumbs up. I'm looking forward to your comments and I'll see you next time. Bye!