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00:00 The war on Autism Needs to Stop 03:15 Do Autism Speaks want to cure autism? 05:40 Vaccines cause 'autism' in rats? 07:07 Autism research is eugenics? 10:12 The worst thing autism Moms do... 17:20 You're not autistic enough, you're 'neuro-different' 28:30 Your child is your whole personality
when I discovered I was autistic in my
mid-20s and I started spending more time
in the online autism Community felt like
it stepped into a little bit of a
conflict a disagreement shall we say it
seems that in the eyes of many people
the autism mom is like the final boss if
you will the ultimate villain the
caricature version of the autism mom
loves all things puzzle piece she
probably has it as a bumper sticker on
her car she probably has it as a tattoo
on her forearm her child being autistic
has become her whole personality she
probably films them having meltdowns and
uploads them to Tik Tok or she makes Tik
toks ranting about how hard it is to
parent an autistic child and then links
her Amazon wish list in the description
or how some sort of merch store with
t-shirts with inspirational quotes maybe
some puzzle pieces on everything lots of
primary colors she's very sensitive to
criticism and she probably gets into
pretty frequent battles in the comments
section but then for this autism mom the
ultimate villain is the young bluehead
apab ticktocker autistic person who in
the mind of the autism mom is wrongly
appropriating the term autistic and
seems fine actually everybody has
anxiety who do they think they are with
their quirky alternative dress stents
and their novelty earrings they're
making autism seem like just another
quirky accessory and the autism mom
takes offense this person who is
seemingly so much less disabled then my
child who perhaps has excellent verbal
ability is arguing that autism is just a
difference and is maybe making jokes
sometimes about the autistic experience
in the mind of the autism Mom they're
skewing public perception away from
higher support needs autistic people and
to make matters worse this caricature of
an autistic person comments frequently
on videos uploaded by the autism mom
telling them they're wrong criticizing
their parenting and if the autism mom
ever says one slightly bad thing about
autism they'll be be there to accuse
them of hating their children and maybe
even being abusive so I've dipped my toe
into this discussion this conflict
several times before a couple of weeks
ago I did a video responding to an
interview that book Angel did with the
mother of an autistic child and tried to
dismantle some misinformation that was
shared there but today I want to see if
there's a way we can bridge the gap why
can't we all just get along I've been
asked quite a few times recently to
touch on the Jubilee middleground
discussion video they featured Abby a
cast member from Love on the Spectrum
and then also her mom Christine and
Christine said a few things that really
upset a lot of people in the autistic
Community a lot of people in the comment
section were not happy Tik Tok is like a
Warr a Battleground for like the rudest
meanest most judgmental people and sadly
a percentage of them say they are on the
Spectrum so I'm going to touch on a few
of those things within this video as
well we'll get on to that a bit later
I'm going to talk about four points of
contention between some autistic people
and some parents of autistic people
online please note that I was being very
silly with the intro and just describing
extremes those do not describe actual
people and most people are not
chronically online and perhaps being
chronically online is part of the
problem but who am I to say anything
about that point of contention Number
One support for Autism Speaks with a
built-in perceived desire for a cure for
autism the stereotypical autism mom is
in support of the puzzle piece Laden
charity Autism Speaks it's not uncommon
that you'll hear autistic people online
refer to Autism Speaks as an Autism hate
group Autism Speaks is trash balls in
2009 which is way too recent for my
liking they produced this advert I am
autism I am autism which effectively
positioned autism as a disease I work
very quickly I work faster than
pediatric AIDS as a demon who had stolen
your child I know where you live and
guess what I live there too and was
coming for your neighbor's child next
and was plotting the demise of of your
marriage I will make sure that your
marriage fails and even today the
following quote can be found on their
website on their page of dos and don'ts
after an Autism diagnosis autism is like
a thief in many ways it has been known
to Rob children of their childhoods it
can sometimes steal the joy and Hope
from parents autism has drained a lot of
bank accounts and has ruined marriages
but it does not have to be that way
don't let an Autism diagnosis do those
things to you it's giving beware of
autism stay alert it's not giving autism
acceptance autism speaks original
Mission was to find a cure for autism
they removed that from their mission
statement in 2016 and then there's the
whole vaccine thing they say they're
following CDC guidelines now Autism
Speaks is not against vaccines we follow
the CDC guidelines but what Eileen lamb
who is the social media manager for
Autism Speaks she's also autistic
herself and she has two autistic
children what she doesn't mention here
though and what I'm sure a lot of
autistic people don't appreciate is that
Autism Speaks did fund Research into
whether vaccines cause autism for a
pretty long time a senior executive
apparently resigned in 2009 the same
year of the adverb I am autism because
she felt like they were wasting time and
resources by continuing to research it
she said the fact is vaccines saved
lives they don't cause autism and at the
time Autism Speaks founder Bob Wright
said that her resignation was
disappointing and sad and also said that
it was possible that autism was caused
by vaccines but by 2014 they were
strongly encouraging parents to
vaccinate their children in 2017 they
made the definitive stance that vaccines
don't cause autism but I guess they just
ran with it so long because families
were frightened and people wanted that
research and people were willing to fund
it and still occasionally people try and
push that narrative today that's why I'm
excited to tell you about the sponsor of
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example a new study attempted to link
the covid-19 vaccine to autism like
behaviors in rats for whatever that's
work ground news found 19 articles
reporting on this and this includes the
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the scientists said to the media
narrative on the bias distribution chart
we have a visual breakdown of sources
covering the story so 21% lean left and
64% lean right best of all we can
compare headlines articles from the left
emphasize that claims that the covid-19
vaccine causes autism are unfounded
there's a warning here that the study
can't be generalized to humans as I said
there were more reports on this story
from the right you can see nine articles
here this one focuses on how quickly the
covid vaccine was created sewing doubt
in its safety and this headline from a
low factuality Source just outright
States covid vaccine causes autism in
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plan which is about $6 us per month so
as I say a cure for autism is out of the
Autism Speaks mission statement but they
do continue to fund genetic research
they have a project called missing which
is the world's largest whole genome
database it is a massive proposition to
do thousands of genomes and then put
them up in a cloud environment to allow
researchers to look at that from around
the world World in study it this is
hosted in Google cloud and in their
words made available to people who want
to work with it a lot of autistic people
are very unhappy and wary of this autism
speak State on their website that they
don't support Eugenics but all of this
data being available on a cloud like
this does make it vulnerable to hacking
now I personally have a bit of a special
interest in autism there may be a few
Clues around here I don't know if you've
noticed just selfishly I'd love more
information about autism about the
different profiles about the different
medical conditions it's connected to we
know we have a lot of hypermobility and
things like that and what if that
information could lead to more reliable
diagnosis and what if that information
could lead to a medication or something
that could help with sensory
sensitivities in a Utopia where
everything is good and right then maybe
but I acknowledge that that's not the
world we live in there was a study
called Spectrum 10K researchers from the
University of Cambridge aimed to
investigate the genetic and
environmental factors that contribute to
Autism and Related physical mental
health conditions to better understand
well-being in autistic people and their
families so again they wanted 10,000 DNA
samples from autistic people and from
their families and there was just so
much backlash that it's had to be put on
hold and you can see why considering the
history of autism people would be
nervous even Baron Cohen who was set to
lead the study came out and said there's
no way that we can ever say that a
future political leader or scientist
won't use the research for eugenics but
he also said I think responsible
scientists can speak out against that
and say there are positive reasons for
doing genetic research you know here's a
library of DNA from a marginalized group
it does feel quite vulnerable
researchers must make sure autistic
people are meaningfully involved at
every stage of the research respond to
their feedback and make sure that all
involved know exactly how their input
will be used and who knows maybe if we
can increase the level of autism
acceptance autistic people might feel
more willing to contribute to things
like Spectrum 10K I think autistic
people kind of need to feel like they're
welcome in this world first you know
that that might be the first step I can
see why a parent of a child who has
comorbidities like epilepsy might find
this quite frustrating but I think
autistic people just need to feel like
the risks are minimized enough for the
potential benefits of any research to be
worth it and of course as the national
autistic Society emphasizes many
autistic people do feel like we prefer
research to go towards things that can
help us right now supports but I mean
back to the Autism Speaks issue my
personal view is that even if Autism
Speaks are you know fine now as they
they claim to be that's probably a video
for another day even if that were the
case I'm not super impressed by their
spending a lot of money seems to go on
salaries if you compare it to a charity
like the national autistic Society so
number two the second point of
contention my personal favorite and by
that I mean my least favorite thing that
parents of autistic children do probably
that is monetizing your autistic child
filming your child in distress and
turning that into content I'm not sure
your salary being dependent on you
posting videos and photographs of your
child is always going to lead you
towards doing things that are in their
best interest you could even kind of
convince yourself that it is in their
best interest and then what if you
notice a certain type of content is
getting more attention getting more
views and what if that content is
negative a parent could think to
themselves well it's the truth it's Roar
and real this is what everyday life is
like in our household and if I post this
content it will help other parents of
autistic children to feel less alone
maybe it'll even help some people to get
their own children diagnosed Ed it's all
in the name of autism awareness and
autism awareness is a good cause right
so I believe this was in 2022 but this
controversial Tik Tok was posted to a
Tik Tok account that now has 100,000
followers I won't show any faces or say
what the name of the account is but the
text on the Tik Tok read the side of
autism people don't see all because the
child didn't get her own way it's not
always a happy house showing this has
always said I'd keep it real at one
point the child is picked up and thrown
down onto a sofa by a man in a response
video her mother states that he didn't
throw her hard but Ian didn't harm her
in that video he didn't throw a heart
but it kind of frightens me that you're
willing to show somebody being physical
with an autistic child in that way on
Tik Tok like what is going on behind
closed doors if you're thinking that's
acceptable to share I just can't imagine
what it would be like to have your most
vulnerable moments shared online like
that it would be humiliating it would be
traumatizing and as several people have
pointed out that content is there on the
internet forever now so your child is
having a meltdown and your first thought
is let's record this and let's put this
on the internet for a bunch of strangers
to see for this child's future
classmates to see for people to see when
this child is applying to University and
you can see her mom does try and justify
it with just keeping it real maybe I
shouldn't have posted it but then if I
hadn't have posted it I would have been
keeping it real would I and I've said
from the start that I will keep
everything real and the people who
disagreed with this content being shared
haters which is often a thing that you
do see from the quote unquote autism
moms everybody who disagrees is a hater
there's obviously been quite a lot of
hate on it I don't understand why you
all hate so much seeing a lot of the
stuff starts to make me feel grateful in
a way that I didn't have a diagnosis
when I was a child I think for some
parents it can maybe make them start to
see everything their child does through
this negative lens of disorder there's
something wrong with them because they
are videos of children doing quite
normal things like showing a little bit
of resistance towards going to bed and
things like that I'm not undering that
obviously autistic people do have
autistic meltdowns but neurotypical
children are not perfect either we don't
film neurotypical or non-autistic
children when they're taking too long
getting ready for school and say things
like this is tantrum awareness this is
parenting awareness this is child
rearing awareness there are
unfortunately so many Tik toks like this
and often the filming of the m mown or
the aftermath of the Meltdown seems to
kind of form part of a punishment for
the autistic person like look I'm going
to show everybody what you've done so
parents who do upload their autistic
kids a lot particularly if they're very
high support these autistic kids they do
have some comebacks that I think are
maybe a little bit more worth
entertaining than like the whole I'm
just being raw I'm just being real thing
they say what if only those autistic
people who are able to consent are
represented on social media or in any
media won't we just be seeing one type
of Artis autistic person not that every
autistic person is the same we'd still
be seeing a lot of different types of
autistic people but we'll maybe be
missing a lot of the spectrum and is
that representation not vital I feel
very strongly that the complaints by
mildly affected autistic adults don't
like that language at all that parents
are violating their kids privacy by
writing about them represent the most
Insidious form of censorship said one
mom severely autistic individuals don't
have the capacity to consent therefore
parents are forbidden to speak about
them therefore the only voice the public
is supposed to hear is that of autistic
adults who claim to speak for the entire
Spectrum in defense of autistic adults
we do tend to say the whole if you've
met one autistic person you've met one
autistic person thing an awful lot but
there certainly are some people who do
act kind of like their experience of
being autistic is everyone's experience
or just at least sometimes phrase things
as if they might think that way so I
looked into what happens in a medical
setting if somebody is unable to consent
if there is truly absolutely no way that
they can consent then somebody close to
them can make decisions on their behalf
but it must be in their best interests
now obviously this is subjective and you
will then get parents who will argue
that Autism Awareness is in their
child's best interests I think as humans
we do have a tendency to kind of decide
what we'd like to do and then try and
moralize it afterwards and mold our
ethics to fit the decision that we've
kind of already made about how we'd like
to do things I think if it were me
trying to make that choice I'd try and
consider whether you know if one day I
was unable to consent would I want my
highs my lows to be posted on social
media and I think the answer is no I'm
not hoping for a dementia with Meg
account one day Meg has dementia now
want I'd probably still be trying to
make videos for this channel myself and
everyone would be like me calm down it's
fine love on the Spectrum Ed but the
last time in 2030 let's just go for a
walk let's have a cup of tea it's all
going to be okay I think you need to be
clear and kind of honest with yourself
with your goals with sharing the content
as well if a meltdown is going on Tik
Tok for awareness although it may help
some parents to feel less alone you're
probably also unfortunately creating a
space for ableism for vois viewers who
do not respect your child I have seen
the most disgusting comment sections
particularly on Tik Tok it can be really
bad what is achieved by this for an
autistic person I also want to say that
I don't think that parents of autistic
children should be banned from speaking
out about the difficulties of raising an
autistic child just like I don't think
any parent should be banned from
speaking out about the difficulties
about parenting just maybe sometimes
that is better done in closed groups
like Facebook groups you not going to
get any nasty people in the comments
that way well if it's Facebook you still
might but it it should be less so and
there might be local groups and maybe
you could actually meet up with people
who understand your situation that might
be a better way to feel supported than
like you know arguing over Tik Tok with
the haters you know your child is going
to grow up someday and see this one
mother of an autistic child said is it
really healthy you're letting them know
know they were a burden to you even if
you don't think they'll ever grow up to
understand what a Tik Tok is maybe
they'll never care what you post on Tik
Tok in that case it would be really kind
for parents of autistic people to
consider the fact that other autistic
people will see it they will understand
and they will care number three the
third disagreement between Autism moms
and autistic people gatekeeping autism
or some parents of autistic children
claiming you are not autistic enough
this came up a load in the video that I
reacted to with bck Angel and autism mom
I'm going to gatekeep autism where I
don't think if you're awkward or if you
think different or if you can't be in a
social room that you have autism Amber
really took offense when people who she
perceived to be individuals who would
have previously been diagnosed with
asperis syndrome when she saw those
people using the term autistic and then
she later went on to reveal that she
didn't actually think these people were
autistic at all despite the fact that
Asperger syndrome was always a type of
autism and Christine aby's mom seems
like she might agree with Amber in this
Jubilee middleground video so the first
prompt was I find the word disabled
offensive what do you think of that word
disabled does it bother you disabled um
for me the kind of autism I have is a
communication disorder he'll notice
aby's mom will say the kind of autism we
have or that's not our kind of autism
she was so in her own world which is her
kind of autism as if to separate aby's
autism and Abby from other types of
autistic people like for for example
when I was a little girl I walked around
in circles talking to myself I wanted to
join the conversation but I didn't know
how and my brain wouldn't do what I was
telling it to do I've had 20 years of
speech therapy 15 years of Occupational
Therapy to be able to talk like everyone
else to get where I am today so you
think it's okay to use the word
disability because it helps people
understand how hard you've worked so I
have the same reaction to Aiden the guy
in the pink here I'm pretty sure I have
videos on my channel where I B basically
kind of say the same things some of my
early videos when I was talking about
traits of autism when I was small when I
was in nurs three I was in a world of my
own just walked around the edge of the
playground and flapped my hands and I
saw the other children integrating and
playing and doing all the things that
children do and I had absolutely no idea
how to be involved with it at all I
didn't really know if I wanted to be
involved it was really confusing and me
saying I relate to Abby here as Aiden
does I'm not trying to equate my
experience to hers and maybe this is
where some autism parents get mixed up I
just love the way she articulates it
here it's brilliant when I first saw the
Walt Disney's The Little Mermaid I
really understood Ariel and she she
inspired me Ariel was my inspiration
because it's just like how where she
wanted to be with the humans and I
wanted to be with the neurotypical
people just like that and when Ariel
became human she couldn't talk that's
how I felt and again I think it's fine
for autistic people like me who didn't
have any speech therapy I think it's
fine for us to relate to parts of aby's
story and to find connection that's
exactly the kind of autism I have too
Abby really yeah except I never
verbalized it like you did here aby's
mom uses the term neurod differenter to
describe Ian because this autism word
and Spectrum now has successful people
and writers who are neuroi and people
who have had 20 years of speech therapy
it's confusing from what I've seen here
Ian seems like a very sensitive guy and
he goes on later to talk about his
struggle with autistic masking which is
essentially trying to cover up the fact
that you're autistic every day in order
to fit in The Mask I've had to put on
has really been kind of like cemented
onto my face and like my autistic self
is like something I'm still trying to
chip away at which is an experience many
of us can relate to and he also talks
about how he feels like there are just
no services for autistic adults aside
from things like speech therapy there
are no Services really for adults and
that's a problem at least like besides
like the speech therapies and stuff like
that the phrase neurod difference seems
very dismissive neuroi there's this
implication that because he's successful
he's fine actually and I just don't
think that's necessary you can tell
aby's story without diminishing anybody
else's and I doubt Christine aby's mom
does know very much about his story
because he doesn't share an awful lot
here he's never met him before and she
also doesn't ask him and you know what
maybe Ian doesn't want to air his dirty
laundry on an episode of Jubilee and
that's fine an autistic person shouldn't
have to prove how autistic they are in
order to be taken seriously I can't
imagine how annoyed aby's mom would be
if somebody found their Tik Tok they
looked at some clips of Abby swimming of
Abby singing
karaoke of Abby going on water slides of
Abby doing speeches of Abby having a
successful relationship a partner that
she found on a reality TV show you know
how would annoyed would she feel if
somebody turned around and said I think
your daughter's too successful to be
autistic my kid will never be able to do
or understand those things that's not
the type of autism we have ab's just a
bit neurod different you know and there
is sitting within this group the father
of an autistic child who sounds like
he's very high support needs and is also
non-speaking he doesn't understand that
I'm going to do this he doesn't
understand what autism is imagine if he
turned around and was like well that's
not our type of autism you know this
competitiveness is just kind of toxic
and unnecessary there is also this
suggestion from many autism moms that
the dsm5 diagnostic criteria now
includes too many conventionally
successful people the term Spectrum
keeps getting big and bigger and bigger
and aby's Mom alludes to this on aby's
website too but the very first person
diagnosed as autistic in 1943 Donald
triplet he had a bachelor's degree in
French and he worked as a banker I'd
just love to know what type of autism
aby's mom would think he had does he
have the same type of autism as Abby was
he worthy of an Autism diagnosis despite
his bachelor's degree in French I guess
it's trending to be artistic and I'm
very worried about this it's trending
mag Thomas well what I'd like to say is
if you have sensory issues you're now
called autistic I grew up with a brother
who had sensory issues he is not
autistic but now you're clumped in with
that in 2013 the way autism was labeled
did change quite drastically a bunch of
different labels that had still been
considered part of the autism spectrum
prior to that such as Asperger syndrome
were merged together to create autism
spectrum disorder and part of the reason
was that they couldn't find consistent
biological markers between Asperger
syndrome and the old diagnostic label
autistic disorder the actual criteria
not really changed that much it still
basically sums up the same traits it's
just that instead of these different
labels we now just have levels of
support needs and the dsm5 does state
that these support needs May fluctuate
throughout a person's life as well which
I like sometimes they make it sound like
the DSM 5 changeed the wording to say
something like all introverts are
actually autistic if you've ever
experienced a sensory issue once in your
life if you've ever worn a sock and it's
got wet and you've not liked the
experience then you're autistic I've sat
at parties with asger kids which I know
you're not supposed to say that that
word but the intelligence in an Asperger
person is such a gift I learned all
about astronomy from this one kid in two
hours and his mother was saying leave
the nice lady alone and I was like no
please let him stay with me that's
because I'm coming from that place of
looking at neurodiversity autism
Asbergers in in a different way I don't
understand the insistence on clinging to
this asperous label particularly when
you sprinkle in the fact that it was
connected to an Austrian physician who
was complicit with the Nazis so then
what is the representation if literally
not three levels but 50 levels of
functioning 50 levels of functioning
yeah it's confusing like on Tik Tok
you'll see like someone with 8 million
followers on Tik Tok who's a comedian
who's the funniest person ever and who's
I'm an amazing fan of is is looking for
an Autism diagnosis at 35 with a college
degree and two kids and you go oh I
wonder what that is for them because did
you have any speech therapy what is it
and why do you feel you need that
diagnosis and this seems to be the issue
with a lot of parents of autistic
children they take their own experience
with their own child and they try and
apply it to everyone not every autistic
person will require speech therapy or
will have speech therapy I don't
understand why we need to dismiss people
completely what other label are people
supposed to use neuro different would
that have helped me to get
accommodations at school when I had to
drop out at age 17 Again I wonder how
aby's Mom would feel if someone came
along and doubted aby's diagnosis based
on a Tik Tok a tiny short Tik Tok that
came on their for you page and guess
what they did I found several threads of
people discussing how they thought Abby
is faking autism obviously this is
ridiculous and I don't condone this
Behavior I think this whole fake
claiming thing is stupid and it needs to
stop people saying that is so unfair to
Abby because yes she is an autistic
person who has worked really hard to
come across as well as she does now and
to speak as well as she does now and
that's how a lot of us feel even if we
didn't have speech therapy it took a lot
of effort and energy to to come across
as quote unquote normal as we do now
this is maybe not how we were when we
were children I definitely have seen
some people on social media claim that
autism is not a disability some people
say it's a difference and I can see how
a parent of a child with a lot of
support needs could see that and kind of
take issue with it but what I do think
is just because somebody doesn't
identify as disabled and doesn't want to
use that label for themselves doesn't
mean they're not disabled they may just
prefer not to think about M themselves
that way for self-esteem reasons
unfortunately disability is really
stigmatized in our society and maybe as
that changes over time more people will
feel comfortable with coming forward as
people kind of are now on social media
and it's causing a lot of push back but
more people might feel comfortable to
come forward and say yes I actually do
need help I actually do need support I
am struggling in this area and we can
work towards a more inclusive Society at
the end of the day it is up to an
individual though how they want to label
themselves and I'm sure there are many
autistic people who would be considered
higher support needs who also don't
consider themselves disabled maybe they
just dislike that word maybe they just
don't like to see themselves that way
doesn't mean they're not autistic though
I really like this comment on Reddit so
there was a post where someone had said
autism is a disability to say otherwise
it's harmful and then someone said
frankly while it is ableism when people
refuse to believe that it can be
disabling that doesn't mean there aren't
advantages to accepting that autism is a
fundamental part of who you are and it's
okay to be proud of what makes you
unique and What Makes You you even if it
comes with challenges the diagnostic
criteria focuses on the negative it is
good for your mental health to practice
acceptance and appreciation of yourself
and who you are as a person even if you
find it hard at times the joys of
delving into a special interest the
soothing Karma stemming the ability to
notice small details in life are all
things that come from autism that I am
grateful for and I think that is
beautifully worded and yeah all of those
are things that I am grateful for as
well one thing that is really clear in
this Jubilee video is that autistic
people with different presentations can
really connect some people on the
Spectrum tend to rock back and forth and
flop their hands and that's a stem why
you got to call me that out I was doing
that just now no literally I've been
holding my hands like
this at the end of the day I think a lot
of this upset and anger stems from
parents of autistic children feeling
like there is a lack of support and then
maybe kind of misdirecting that towards
other autistic people I have cried more
hours on the phone trying to get
accommodations and programs going for
her after 18 that I did when she was a
younger kid which leads me on to point
number four autism moms makes their
child's diagnosis their whole
personality and this is where I think I
empathize most with autism moms or just
parents of autistic children that's not
your identity that's your child you're
weird Okay this person has really great
eye makeup and I love their editing but
I do disagree with this point if you're
a single mom or parent if you can't find
a suitable school placement for your
child if you are only offered 48 Hours
of breast fite care a year as one parent
stated how are you not supposed to make
your child's diagnosis your whole
personality if you have a high support
these autistic child you live and
breathe caring for them I'm sure many of
these moms would love to have a hobby
would love to be able to take days off
sometimes but they can't it has become
their whole life it has to be some
autistic children need somebody with
them 24/7 in order to stay safe my
sexism radar starts to go off a little
bit when I hear things like this too
because it's never autism dads it's
always autism moms where are the autism
dads there is actually a great lovely
autism dad in this Jubilee video he's
he's great I talk to him about
everything people always tell me when
they find out he's non-verbal they're
like you should talk to him I'm like I
talk to him more than I talk to anybody
else on earth like it's constant there's
things he doesn't understand like
fundamental things that he doesn't
understand he doesn't understand that
I'm going to do this he doesn't
understand what autism is he doesn't
understand things like that but I tell
him when I relate to my son what I try
to do is I try to put myself in his
shoes so I write a blog about him I try
to do autism appreciation I call it
where I talk about the positives of
autism and how he's a great kid not
despite autism but in many ways because
of autism he seems really really loving
and caring but in general mostly we're
hearing about autis and moms because
most of the time it will be women who
will be giving up their careers to care
for their autistic children I never like
the idea that any parent should not be
allowed to share negatives about
parenting I think that gives like toxic
positivity Vibes it isn't always perfect
doesn't mean you hate your child just
means that everybody's human sometimes
you know we need to talk things through
we need to maybe vent a little bit as I
say probably better to not do this on
tick talk closed groups are probably a
better space for this in theory you
could become a carer for a loved one at
any time somebody in your life could
become disabled and you could need to
care for them I love my family and I
think I would step up but it doesn't
mean that that would be easy for me all
the time you know if I wasn't able to do
my work I'd be so sad about that and I'm
sure autistic people can really relate
to that particularly if if you work
around your special interest that would
be really difficult the knock of not
having that second income even though in
the UK you can access some supports it's
not going to make up for the income that
you've lost if you just look through BBC
News you just see constant stories of
how autistic people and their families
are being failed again and again and
again there is so much that needs to be
done no wonder so many parents of
autistic children are frustrated they
need more help and I think that will
definitely help us on our pathway
towards autism acceptance obviously that
are parents out there that are abusive
that never should have had any child
that's not the people who I'm talking
about here as an artistic person I find
it somewhat offensive when people say
that I'm making autism my whole
personality you know I don't think we
should be saying that about anybody else
and you know what there probably are
some parents of autistic children who
are undiagnosed autistic themselves and
maybe it's become a bit of a special
interest for them I definitely had a
special interest in parenting with my
son for a while there for sure and I
don't think that somebody being autistic
necessarily means that they would know
exactly how to perfectly parent an
autistic child you know when you are a
parent advice from people particularly
when people don't have children
themselves it can be really annoying I
do think there is value in parents of
autistic children listening to autistic
adults for sure it is thanks to autistic
Scholars many of whom may be considered
lower support needs autistic people but
it's thanks to them that we understand
things like stemming is soothing thanks
to autistic Scholars we're learning more
about autistic inertia autistic burnout
and the theory of monot tropism which I
really really love was created by
autistic people monot tropism
potentially offers an explanation for
why some autistic people are
non-speaking focusing on our shared
experiences of the world I believe will
bring us closer more quickly to our
shared goal of healthier happier lives
for all autistic people and their
families I don't know maybe I'm just
being too optimistic but I do think with
both sides maybe we just need a little
bit more respect a little bit more
assuming good intent if you would like
to see more videos like this one you can
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door it's fine it's just a really really
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so I do one advice video where people
send in their problems and then I also
do a reaction video too I think I'm
going to be reviewing oryan Kelly's book
as the next one but I also have one
where I reacted to this documentary
about a school just for autistic girls
made me cry numerous times it was lovely
though and if you haven't seen the video
where I reacted to Buck Angel's
interview with the autism mom Amber I'll
leave that linked down below and if you
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bye
he
he