Sickle Cell Awareness Day | A Warrior’s Story of Strength & Advocacy

Sickle cell disease is often referred to as sickle cell anemia. Because you are prone to anemia. I support the blood itself. Aiko, that's enough. Aiko, enough. So, do you feel pain? Yes, sometimes you feel that pain when the blood is breaking down, It's a joint thing. I hear the sound. Now that is between 12 and how many days? No, it can happen randomly. Wezi panga when you're in pain. Sometimes the zina cells also decide when to break down. They're sickling. Yeah, it's called sickling. So they can strike at any moment. Zina heza can break down at any time. So this could create a painful experience. Yes, we are now facing a crisis. Sase ni mkofiti, welcome back for another beautiful And an amazing episode of Seles Reflection. By the way, I hope you had a wonderful weekend, didn't you? I hope MLI feels Mua's appreciation, okay? Ata Kama offers a variety of gifts for Father's Day, I hope you felt the love. Yes, and today we have another episode, So thank you for tuning in, thank you for joining. Today we are going to learn. Leo ni kwa class, ata mimi mwenye ni kwa class. Our guest is a very wonderful person. alirich out via email, [email protected] And I love it whenever someone reaches out and whatever they are addressing or whatever they want us to talk about is something that, in his view, both Celeste and you So yeah, today I'm here with Tracy—if it weren't for you Like, tomorrow's sun, June 19th, We observe it as World Sickle Cell Day. Yes. Just a quick note, thank you so much for reaching out. And welcome to this show. We welcome you, warmly. Thank you, thank you very much, I feel welcome. Therefore, therefore, therefore, therefore, I am a health advocate. I am a sickle cell warrior. So what does it mean to be a sickle cell warrior? Therefore. It means you are born with sickle cell disease. which is a genetic type of illness, which means it is passed on to you through the genes of your parents, Not through any other decision or anything else, just genetically. That's what sickle cell is, briefly or in general. Thank you so much, and when you reached out, I went like Nika Google, how much is Nika Google the theme This year it's "Tell It Loud," so I'm happy you're here. because we're going to say it out loud, yes, most Some of us, like we've seen it online, we've seen it but we haven't exactly understood what it is is, and I love that you've said it's genetic, it's Not that something you did, Ama, what is it? It happened, yes, so I would love to hear. Your story might start with your story—when did you, when did you? You learn that you have it when you're young. It happened, okay, yes, so for me, uh, as Tracy, looking Back then, I can always remember, you know, going to the hospital. and then from the time I could understand I could hear the word "sickle," so I was like, okay, what does it mean? That means, so later on, that's when I realized The year has just ended. with them. Etonaiti. On the kilo chakali www.yamathologist.com It might be so meq Quite a hospital Like terms, yeah, how old were you? You are Ahaha, from when I was very young Because this is a condition you're born with, so I think my mom I knew about it from when I was really young. g I think when I was about one year old, yes, yeah, That's when she found out about it, so I kept going to the hospital. For checkups and all that, yeah, so that was the only difference. that I kind of had in my upbringing, number one, the hospital visit, Sometimes I would be admitted, I would always have to stay warm. You know, dress warmly when you're going to school. You have to drink a lot of water to help you cope, yeah. Yeah. And even as we speak, And even as we speak I'll help you understand why all these things are important. or how they even affect a person with sickle cell disease. Alright. I want to hear about your journey, like going to the hospitals. Because this is how I feel. How do you feel? How does it affect you? Like, did you go to school? So I want to hear about your journey. Okay. Yes. So. When going to school, is there a problem with going to school due to admission? Yeah, I went to school. But for me, I wasn't really affected much by the kuna gaps. I'm behind in school or I've missed a lot of classes. So sometimes you'd find me going through painful crises. So a crisis is something that happens to people with sickle cell. because of the way our blood looks Do you know the crescent shape? Why However, Indeed, Yes, Indeed, Yes. Why However, with However, with However, with And since the cell is breaking down a lot, That means there is a lot of inflammation within the body. Yes. This means a large number of infections. That's why I think when you go to the hospital, They refer to people with sickle cell disease as "sicklers." Because you're prone to getting sick. You're prone to getting a lot of infections. So does that mean you need blood from time to time? Yes, that means you need blood from time to time. To However, A lot of times, Zinai has sickle cell anemia. Because you are prone to anemia. with The blood itself is aiji support. However, Aiko, enough. Aiko, that's enough. So, do you feel pain? with Yes, sometimes you feel that pain when the blood is breaking down. Indeed, You feel the ache in your joints, you hear the creaking. That is between the 12th and how many days? with Thus. No, it can happen randomly, especially when you're in pain. Sometimes the cells also decide when to break down. They're sickling; it's called sickling. So they can reap at any time, the zineza can break down at any time. So, this can create a painful experience and we are now facing a crisis. Some explain it as perhaps feeling like being struck with nails in a kugwara. Some describe it as glass or hot liquid flowing within you in a kumiza. Because the pain is throughout the body. Yes, it's the blood that's causing you to feel pain. See the bone, feel a pain like flesh. See that one part. See that one part. Throughout the entire body. In a song. but most of the time it affects the joints, yes so you can find knee, back, wrist, or elbow pain something like that, so and this has Been your journey like ever since, yeah? So, what do you do, so? Are there painkillers available so that every time you feel pain, you can take one? to go to the hospital for different therapies because number one, this is a condition you're born with You have to learn how to live with it. So yes, the pain can reach such a level that you need to be rushed to the hospital Okay, and a hospital, they'll do different things for you therapies such as hydration, so a nekewa drip to help blood circulation. Take painkillers to help you manage the pain. But mind you, this is a pain that is happening to you because the blood is breaking down. So if you have a headache, you'll take a tablet. And then it just goes. It's a hassle you have to handle. Yes, you have to go with it, slow and steady, that's the way. So, as JC, how do you handle it? It has turned out differently with age. Over time? Yes, over time. Over time, in a change. Because when you're young, definitely the hospital, you have to take The painkillers, you have to relax, you have to just see how it is, Aisha. It's Aisha, when it's Aisha. As you grow older, you become increasingly aware. You start avoiding the things that will now cause the pain. For example, you start avoiding things like cold weather triggers. A dress is warm. Oh, so you finally understand. You know it. Okay. Una... Start drinking water. Like a dry riverbed, I thirst for water because you're keeping yourself hydrated so that your cells don't dry out. If you call, don't start breaking down. Okay. You start avoiding certain situations because in a later stress, which can trigger a crisis. Alright, so now you're avoiding the triggers. You now avoid the triggers na unajimanage, unajikipu warm, Stay healthy, eat well, foods high in iron. Yes. So, okay, now I think I'm in a better place. Now I'm starting to understand. which is creating awareness in me, so I'm trying to. So, are there any misconceptions you have about these things? Because now you're raising awareness about it. I hear the sound of blood; we only have six left. I know, we only hear about sickle cell anemia in blood. I'm sorry, but I can't assist with that. Now that you're here, we'd love to know Some of the misconceptions that people have about the disease. So when it comes to stigma and misconceptions, There are different parties involved in it. The person who has sickle cell Kuna the parents, kuna the relatives the people you interact with, maybe teachers, students, What do they understand, how do they relate to you, even the church? Even in school. Yeah, school, church, all around. So now we can start with, for example, stigma surrounding a parent or a child who has sickle cell Number one, some don't understand. So think of the ones who are with you in hardship. There are those conversations of Umeleta Damumbaya kwetu, witchcraft, segregation Yeah, so your thoughts are as good as mine about how people like Mashinani suffer from that stigma. Then there's that one of you who is the person who has sickle cell. So inaji presents differently. So with other people, it's sometimes slow development. Even when it comes to adolescence, before you even reach certain stages. Why However, However, Indeed, Yes, Yes. So definitely, the wengine had an effect on the organs. So you'll find that some are affected, even perhaps their body parts such as limbs where they sometimes even have to get a hip replacement or something along those lines. So you can suffer bone damage, you can experience organ damage, You can get even some that affects them. In the brain, they even suffer a stroke. Yeah, because now if that crisis occurs in the brain, You know the blood cells are located there You know, yes, that can happen. Are there levels? Are there levels to this disease? Is there like we can say a mild one, a medium one, an extreme one, yeah So it affects people differently, yeah. definitely affects people differently Because not everyone who is attacked exhibits the same symptoms. It feels like there's someone who might it affect? They might have sustained bone damage—you'll find that there are some who are truly affected, to the point that they get a lot of painful crises That means they're always possibly in and out of the hospital. but generally, you get it all over you because Of the nature of our blood, you get a lot of infections. so that's general or do you find um In some, they have a lot of jaundice that's the yellowness of the eyes due to blood in the break it down so that the effect is that there's a lot of bilirubin in the blood causing yellowness That yellowing occurs when blood breaks down in the liver. So now there is that effect of the jaundice. You see, it affects people in different ways. But there are some things that are constant There is that pain that is constant. The pain is constant. There is that one where the infections are constant. Yes And there is that anxiety because You don't know when When will it hit, yeah? Yes So, you begin by seeing both parents. So the course, like, when you're born with sickle cell So, the course so both parents are carrying The gene, the gene, yes, you have siblings, am I? The only kid, yes, I have siblings, so all of them. All of you in your family, no— it's me, I'm the firstborn. then my sister, she's late, she was Also a warrior, then my brother—uh, he doesn't have the gene. So that means he's fine, AA is normal. AS is a carrier of the gene. AS and AA is what AA is a normal gene. Okay, so this is a person who Does not carry the sickle cell gene. Okay, AS is now a carrier. like the parent who gives it to the child, then SS is someone Like me, who has sickle cell, we saw a warrior. Yes. So how does it now from you? Welcome to the game. Therefore, Welcome to the game. Therefore, the sisters are close to the gene. Thus, the sisters are close to the gene. Okay, do you remember in class during science or biology, There was that thing about crossing over for the gene. So let's say one parent is AA, then the other parent is SS. So when they have children, some of them will have AS, That is Zakaria; the others will be SS, which stands for sickle cell. And the few will be AA, which is normal. That's how it happens. That's why it's important for a person to know their genotype. before making the decision to go ahead and have a child. Because if you don't know your carrier, 会影响到目前，这是一个普遍存在的问题 due to, you know, rural-urban migration. In Nairobi, it's mixed. So you might find someone who is a carrier, hajui. Then they met another person, Zakaria, whom I didn't know. Because perhaps back then your grandparent had a certain issue, Maybe they were in pain and didn't know what it was. But I'm glad you said your brother is okay. So it means we can meet the carriers. and still have a baby who does not have the disease. Yeah. but now that one, maybe if you have children through like IVF in which you are able to control the gene on on I'm saying like, let's say you're a carrier and your partner is also a carrier, we want to have children and when We want to make sure these children don't have sickle cell disease. What is the only way we can do that? Do it? Yeah, through IVF. So you don't just take chances. No, you have to do There may be a place where a person can find refuge on that day. o IVF-related infertility. b Fio. Therefore. But There is a possibility that you might have a baby. who is not, yes, okay, yes, so for every the ratio It's usually one out of every four, yes, might not have sickle cells. because now you're dealing with probability yes you don't know So the only way to know is first by knowing your genotype, yes. I would love to know, and I'm sorry if I'm asking so many questions, but it's okay to ask because Everyone is asking those questions, yeah, I'm sorry. So how has it affected your day-to-day life? because now I'm thinking that this pain might strike me anywhere At any time, I can't tell when It must have affected a few things here and there. and I would love to know starting from school Because it's during school hours, during exams, because it was the time to harvest. Teacher, please understand, we are trying to raise awareness. I can imagine what it must have been like back in the day. Maybe yeah, it's somewhere, but yeah. Yes, awareness is created through communication. So, I can say something like a day in my life, for example, It all starts with a solid foundation. Make sure you've eaten a nutritious diet, high in iron and phosphates. to at least help your blood be healthy. Look out at the weather— is it a cold day? Is it a warm day? Dress accordingly. Because one of the triggers in crisis situations involving extreme conditions such as excessive cold or heat Yeah, so you dress appropriately. Even right now, the month of June, as culture warriors automatically, because that's our way of life, You know, you have to be careful. Right now, I have to make sure I'm keeping warm. to avoid getting into a crisis After that, when you leave the house, carry a bottle of water. Hydration is key—help your cells move within Have you taken your medication? Your blood vessels. that folic acid to help you produce more red blood cells because yes Already the ones we have are somewhat defective, like a supplement. Yes, okay, so then there's also a medication called hydroxyurea. so hydroxyurea helps us to make more of that fetal hemoglobin or the normal hemoglobin to now assist these other ones So every day, you're taking supplements, using drugs, and watching what you eat. Yes, there's that daily medication, you have to watch what you eat. You must check your mental health. You avoid that kind of stress, you understand? That was my next question, because mental health is crucial. Because imagine, and I'm so proud that you even reached out. When you reached out, I wasn't sure whether it was you. who is like, if you're a warrior, or you're talking about it because you've seen someone. So I am truly grateful. Even for you taking the chance to reach out. So about the mental health aspect, how do you deal with it? Because I can imagine you're trying to raise awareness. But Bado, you're always lying. And when I look at you, I can't tell if you're sick or if you're okay. You just look okay. So if there were a crisis in the public area, you'd be like... Who is that young girl? To However, with Indeed, with Thus. You know, something that is. To However, with Yes,.YELLOW The negativity of things like, you know, every day, nini, with Nini, this can happen because life is like a lottery. Yes. Nobody else has ever done it, you know, like me, I'm tall, I chose, Yeah, to be tall or, you know, like this or like that. So you just make do with what you have. You communicate, and you seek a good support system. You look for the people around you whom you can rely on. You can even have conversations with it. You don't get into habits that will cause more problems, you know. because you're already Taking care of yourself, you don't choose a friend who will land you in more stress You have to be very soft with yourself you have Be very kind to yourself because now if you fall into a negative kind of storyline Wezi has passed away, and I am deeply saddened. Wezi has passed away, by the way. Yeah, you have to get up, you have to try and do something. Yes, many are negative. There are many negatives. Sometimes it's the surrounding environment. that is now triggering it. That's true. So you avoid that environment. You avoid that environment and also become vocal. You become your own advocate. That's why I'm here too. You communicate, you help others understand. God. God. God. God. That was my next question. Because now you see We are learning And we are learning it through you. So what kind of support? I know that Minazi, those people are too kind. Because when I look at you like this, Tracy You look okay. You're okay But she was silent At a certain place, I hid it. I'll be like Tracy, that bad thing Because Tracy, are you okay? Even if that crisis pain I'll be like Tracy Do you work with something like Indonesia Tracy has No, that's the thing in Kenya, we don't have the But you find abroad, for example in the UK, Sickle cell is considered to be a disability. They get that card. They receive certain facilities that help them at least be able to cope. Even in the workplace, they have that flexibility. So you have to ask yourself how warriors are coping. In Kenya, it's quite difficult, and you know. when you're coming from a place where you need support and then you feel again as if you have To ask for that support, yeah, it's kind. of things that make you feel inadequate, so Many of his failures were due to his own actions, and many were due to chance. bigger For many, it is also a matter of doing what is right. To just so my Therefore, time when using time kutumia, kutumia, kutumia, kutumia, use it. disability than the one we see that we face disability or we see because, like right now, if you cannot You can't control when you're going to fall ill—it might just happen. because of the nature of your blood Then it means you need the appropriate support. not only outside with the facilities that you're being given, but also in hospital, do the doctors understand how to measure the type of medication They are giving you Like you find in a hospital, sometimes there can be that assumption of This one is just abusing painkillers. You know, yeah. So, because you're looking at me, and then I'm telling you I'm in pain. Feel this pain. The brain is the seat of pain. So, the kind of pain that you would feel and you'd be screaming and rolling here, I'm already used to it. I'll introduce myself and say, Doctor, I'm in pain. My pain is an eight. Then the doctor will look at me and say, Is this serious? Do you understand? so there is that need even in hospitals to have doctors who have that kind of experience to deal with maybe pain management or deal with sickle cell warriors and things like that, yes, you're really Enlightening me, I'm like, what I am, I'm getting to Understood, I've seen it here. And there I have a friend, yeah, who has a kid, but this We really don't understand where to come from or what to do. Do you know? Yeah, so maybe we can Discuss some of the things, um, this some Of the things that you people need us to do, you see when we get to understand there's this awareness aspect of it so when we create the awareness Perhaps there are things we need to do that could truly make a difference. As you've mentioned, there is an event taking place. On Friday, yeah, maybe. You can just do it. Chonit S so if We can get those donors if we can get people to come, yeah, we can. Yes, because some of us would love to offer help in one way or another. Help, but we don't know. Yes, we really don't know. Yeah Hi Therefore, June 29 absolute, They can reach us by checking our pages. It's called Crimson Courage on Instagram on TikTok, on YouTube 75x Why Therefore. Indeed, However, Yes, Yes. We will post there possibly more information about the event Or perhaps we could even leave some of the information with you. Yes, yes, you can. Yes, for those who would love to register, Come on board, learn, and even use their voices. We are also inviting content creators to come help us raise awareness on the day. Have you seen, is digital, Is the platform effective in raising awareness? Yes, indeed it is, because you know, with digital, that's the new medium. From there are able to understand because if you look at the kind of maybe the content we are working on, for example, like people a a video we are speaking about Therefore. some challenges we face, such as, for example, imagining going on a date Yes. Then you experience a sickle cell crisis—what happens? Does that guy understand? Alihepa, even though real ghost What happened when you came here? Is the way you react I'm a pain in the ass, can I a day that you attend, hmm There are people, you know, who understand their bodies differently. So you can kind of sense in the morning that you're not okay. You know, you're a bit uncomfortable. But ah, let me just go. Maybe things will be alright. Hehehehe And then, when the rain arrived there, that's when the year began. Year. Right now is when the pain has hit. So it can happen that way. So, you know, They have said people are different. There's that one guy who feels like he's been there before, anafila in a certain kind of way, and then they'll be kind to themselves and say, ah, I'll stay at home. Then there's another one, they'll be like, me, I need medication; I'll take a painkiller. But there's that one who will push themselves because you are a human being. You want to go on a date. The date has arrived, you won't go. You were the one who was waiting all night. Oh, so you're going to the sun. There is one who will be afraid to speak the truth. Maybe, you know, I'm just not feeling a certain way. Or even in the workspace. HR is like, "Oh, this one—every time you're sick, you're at home." You're sick, you're at home. These eightaka are of Roman origin. NikMore will arrive at the meeting point soon. When I arrived, At Graham's large hormone verification. On the beach I wasted my money on a cheap, worthless thing. Energy is the force that makes things move, and it is present everywhere, even in the smallest particles. When will the KUT services reach the extreme point that, In the meantime, there are no other oranges. No, I'm wondering, what made you, I love how vocal you are, Now, I'm wondering, what made you... I love you, I'm still staring at you and wondering, Tracy, so what made you get to this point of, I really want to talk about this disease; I really want to share. Was it that place where you could hear the sounds, What kind of person is this that everyone knows? Because I'm inclined to think that kuna mseye zetaka, Who are the people who know what it is? Since I look fine, why should they know? Yeah, that's true, that's true. But for me, I think deep down it stems from empathy. Thinking of that mama. Who might be somewhere inside, an access, or even the hospital staff, they don't understand what this is. So they are not receiving the proper treatment. what they might need for their child. Yeah, for me, caregiver support is something I am very passionate about. Because I think back then of, you know, my parents, My mom, you know, she was always taking me to the hospital. Thanks to my dad, I was able to have good medical coverage. but now what if it's not there what if the one treating you does not understand what they are treating what if that person or that the parent fails to understand that this is a genetic kind of illness so it means life in the village or it started those rumors about witchcraft, you understand because even back at home in the village The conversation is not so open. You are able to see after the gods who created the gods as There are many who add God. In you, in you, many in you, others doing in you Mine are mine, as mine as mine... ...many people worship God. God and God are as many as my God. As mine, so yours. Therefore, it is a violation. Yeah, that's why I'm really vocal about it because it's not Normally it's normal, right now in the world two hundred thousand and children are born with sickle cell Every year, yes M ea Yeah, it's normal right now in Nigeria, before If a bishop or a pastor decides to marry you, you have to show that genotype test because it has become such a major issue e from those who come from the coming ones, because of this, especially from the central area. You can't just go ahead and get married without, yeah, even if you look In the comments, it's common to see "Do you know her genotype?" even When you see, you know, those YouTube couples, yeah In the comments you'll just see "Do you know her genotype?" Yeah, yeah. So it helps, it helps, it helps. because we don't need to reach such a situation as in India in the world so that Now our government can start putting priority on genotype te s t Yeah, hmm, yeah. That's why I'm quite vocal about it. So, what happens during that time of the month? Hmm, so the time of the month that obviously affects the blood because it's sick Therefore, now, Selanemia. As for that, You have to be careful with your diet, so you just have to really make So you just have to really make sure you're eating the right kind of diet At that time you have to be, you know, kind to yourself. Make sure you're taking your medication. So there's definitely that effect of having sickle cell and going through your monthly periods. Hmm. There's that effect. And also when it comes to pregnancy, it means before you become pregnant, You can't just get pregnant like that. Or it could happen, but now you'll need to provide a lot of supportive care. With your diet, you might need some supplements—they're necessary. To check if your blood is okay, what do you need for support? Yeah, so it just involves that. That doesn't mean you can't get pregnant. or it doesn't mean that now because you're on your period, You will always experience a sickle cell crisis. It simply means you have to observe yourself. and recognize the type of care or support you need at that moment, And make sure you're right on target with that. That's why we even have those flow calendars. You know the period tracker. Even for an ordinary woman. As you reach a certain week. The energy levels change. Or even changes in mood. Things like that. But now you must consider that you are a warrior. So now you're including maybe a lot of bogaz, People of the city, the most important thing, the most important thing I understand At that point, it will be possible. To prevent slipping from the edge Therefore Like a flash of lightning By departing from The end of this story Come from the door Leaving from leaving From the beginning Upon departure If you're not a fool From the car Sickle cell manifests differently in each patient. So for me, I've been lucky—I haven't gotten much. I think I've had blood transfusions just twice in my life. But the good thing is that you can always take care of yourself. by taking your medication on time and your diet. So honestly, in management The sickle cell diet has played a key part in what I do. I do take care of myself as well. As for mental health, you find that there are some things I don't do. There are some habits I don't really get into, yeah. so just understanding yourself then now you can Be able to manage yourself, but therefore blood donations When it comes to sickle cell, it's quite important, that's why even as sickle cell warriors as advocates, even stakeholders who Who supports people with sickle cell? We really ask for people to go out there and donate blood because you don't know who might need it and you don't know when it will be needed, yeah So just go out there and do your part, okay? I love that. I'm grateful, yes, then in regards to the event you're having on Friday Yes, so if, okay, so when we come raise ma so you guys raise money, you get donors, get What is the money for? Like, is there a place if I have? If I'm a warrior, I'll receive free treatment. Mom, what am I going to get? What are you all raising for? So this one is actually really fun. the thing that we're going to do that we've done before so back in 2021 we did something that even to me it sounded as if it were quite impossible that we did a 24-hour bicycle ride from Nairobi to Mombasa to create awareness about sickle cell and to help equip our organization, called SCA Kenya, with a basic sickle cell screening machine So this time in 2025 we want to do the same. but on the other hand, we want to take a trip from Nairobi to Siaya that will help us raise awareness about sickle cell but also in Siaya there is a building that we want to equip and become a clinic that will now serve the community Yeah, because definitely in that area it's common to have sickle cell. So we already have a sickle cell screening machine. that has been donated to us by Hemex Gazelle But you still know how to run a clinic. or hospital, you need many more other equipment Yeah, so this will kind of be like a launch on June 20th. so from September onwards and onwards and onwards and onwards and onwards I However, with However, I'm asking, I'm wondering, do you ever walk alone? because there is nothing to indicate that you have with This, this, and this—so that in case something happens to you Yes. So do you always walk with people? When the bodyguard arrived, he was already there. Do you always move around with bodyguards? and not necessarily someone who was really close to me or I would automatically realize I'm doing things with Even anything, projects. Even though my boss knew her well, he would call Whenever she calls, maybe he's not here, I'm not on the phone, or he can't reach me. The person I used to work with all the time was my sister. And my sister passed away in January this year. So for the first time I'm feeling like yes, I'm walking alone. Yeah, because definitely having also a secret. Definitely having a sickle cell warrior like me, she's a lady, We grew up together, even until the day she passed away. We were living together, we had that connection, you know, siblings who have signals, you know, even you with your sibling there's a certain face your sibling can make and you just know, This one's Ameko, or is she trying to say something, yeah, So there was that bond between us of us being together like that, yeah, so something that has deeply affected me mentally, and I'm just trying to heal From that grief, you know, slowly emerging from it, being gentle with myself. That's the only thing I can do because how old was She was 28, and I'm two years older than her, so we were that close. Oh, for the past 28 years. Yes, I'm truly sorry. Very sorry. So are there, like However, Yes, However, Yes. Mother, are there places where you can see this? Whatever, sickle cell is dominant, like kukosana? Maybe, just statistics, see a TVR... So, sickle cell, if you look at it scientifically, or You know, ISO, like, things such as Darwinism and all that stuff, It's kind of like a way for the body to preserve itself. .ndimifadhali kwa habari kwenye mawafu Especially in areas around large bodies of water such as a large ocean or lake. So you find genetically persons with sickle cell are That is when it comes from the hand and the hand of the other. Therefore, the larger the hand, like large water bodies, like maybe Lake Ump The old man is as old as the old man is old. Therefore, India has the highest number in the world. of sickle cell, so even in Africa you find the highest number is in Nigeria, because you can see their location. Here in Kenya, it's predominantly along the lakeside. Lake Victoria side, that's Nyanza, Western Kenya. That person, that person, for the sake of the wound, for the sake of the pain, for the sake of the wound. Therefore, avoid showing the first names of the unknown. It's hard to endure. In the meantime, when a person is suffering, it's unbearable. For the time being, the weather is hot in Kisumu. Another one is living in Kwale, I'm going to Nairobi. Therefore, a person desires one cup of tea to quench their thirst for Mbu, We need therapy for the first steps of walking. Therefore, they do it. Therefore, therefore, therefore, therefore. Many things you can do, many things you can do. Many of you are aware of the way in between. You can do it. Lakini, that country of yours is a mess. First, you must do what is necessary to maintain balance in doing. To be given to the person who has the most to lose. Because, for the sake of being In countries where the minister of health is responsible for the prevention of infectious diseases, The girl was already the most beautiful of them all. It was a two-day event. presentations on silence, Lakini, I hope we understand this well. It's not worth it, not worth going through that. In Karen, we are able to donate with the Rotary Club of Karen a sickle cell screening using a machine that does something similar the largest of the three small islands a cup to drink to bring forward Zaidi ya kumbura ya kumbura ya kumbura. So it's a test. So it headset at Maria Domenica Clinic. Is it free? No, you can do it at an affordable cost. That's around 1500. But if you go to these other facilities, You can range from 7,000 all the way up to, yeah. Is there like, do you have a WhatsApp group? Do you people meet like the warriors? Yes, we do. Do you have support groups? Okay, we actually meet a lot, you know. We also have organizations that support us. so you find that some support groups are formed from Just us warriors; others are formed from organizations. but it's a tightly knit community We know each other, we celebrate each other, we help each other, yes. Yes, I want to join. Ah, okay. Okay. So people are ready to join. Okay. Yeah, I think we'll share your details; we'll share them. Your number, we'll share the pages. Yeah, you've said that you have a podcast where you talk about what you create awareness about yes because so we are going to share all these handles so that if someone has watched this and It feels like I need more information from Tracy, yes, they can. Just reach out, yeah, yeah, I don't even know what to ask. Because I'm like, you're so strong, even you can talk so openly, like that Indeed, And I know people might have so many questions. Maybe there's an elder there, just go ahead and visit. No problem, I really, really, really need help. with I'll tell them to come to the event. Also, just like your details, we can share your details here. Thus. Because they are the ones who now want to ask you more. Okay. Yeah. So, if they go on the social media platforms for Crimson Courage, From there, I'll definitely be able to catch up with them. Yes. On TikTok, Crimson Courage. Your parents are on TikTok too. No worries, it's just TikTok. No worries, you're not alone on TikTok. YouTube, Crimson Courage Low-quality content. Come here, let's talk. Let's continue the conversation. Let's get solutions. Even on the day the doctors come. You will be able to ask questions. Yes. On the day you will be able to complete your screening, Check your genotype. Yeah, so guys, the day is Friday. Right, on the 20th Yes, this Friday This Friday, the 20th I have free entry, right? Yes, free entry And we need people, people just to come Even if you come, we will not wait for you. Just come and learn Just come and understand what sickle cell is. Like, the neighbor's dog bit me. As you've said, people there in the interior I am so tired of these things Hawa juwi Like, that's sad Why That's why we're creating content. that even speaks to what we call outside. So you'll find that, for example, we have an animation, Yes. a radio drama about sickle cell You know a child who has sickle cell? The kind of challenges they are facing at school. You know, at home and all of that, yeah so just creating those avenues and good partnerships To tell these stories—yeah, that's what drives me. and that's what drives Crimson Courage And communication—it's exciting, you know? I know even though you didn't know, I know you didn't know Learning about sickle cell will be this exciting I didn't know, and then The fact that we We You've heard one person, you've seen it somewhere on TikTok. The sun rises in the east Yeah but then until it comes closer Pumdo is asking again and again Where can I get this information? You see, that's when you're eager to find information quickly Fast, so it's always a nice thing when you talk about it. Titu mapema mapema You know it well If you're a couple, there's a couple I watch hii wa mwe end up doing their genotype Then they find out yes, that we are both carriers. You see, it's a good thing, like Wamejo Mapema Now they know how to handle it, Mapema You know, yeah, yeah, so I always love it. when we get to learn personally, when I get to learn I feel like someone out there is also learning, yeah So坚实，one last message to us Amatu. Okay, maybe the sickle cell warriors to maybe the people you're letting Telling the information to Yes, what you'd love I know there's something Write your email There's something you really wanted People know Yes Yeah, definitely apart from knowing your genotype Be strong Be resilient Be empathetic Know how the other person is doing You know, just ask that question. Try to be close Don't be part of the stigma You know, so sometimes I know it can be a bit hard, a bit challenging to kind of relate. or understand how you start approaching a person or how do you begin providing support. But just being there, being yourself, Being kind, you're already being a better human. Thank you. Thank you so much, Tracy. I love the part about just being kind. Just be kind. Like you don't have to see someone looking a certain way Like physically disabled, but kind inside and out. Be kind all through and through. Thank you so much for coming. Thank you for your time. Trust me. Hi, please help me, I'm stuck. My What one are you looking for I don't know what you're talking about. That's exactly what we wanted. Like that one person Someone will learn something Good morning Ama atume video kuingine That's precisely why we encourage shares. Because I might watch Maybe this is helpful My share But I will share I land on someone who needed this information or even an organization that can provide support A certain community somewhere That's true Thank you so much Thank you for your time. And thank you so much for reaching out. I didn't know that tomorrow we observe So thanks to you And the theme is tell it loud So guys, to share, to tell it loud Share Just share, please, just share, yeah And thank you for coming, so guys, thank you. For watching, that's it from Tracy. I'll see you next week, bye.