This Episode of Cele's Reflection explores autism spectrum disorder (ASD) and offers guidance to parents with autistic children.
The episode features a mom sharing her experiences raising a child with autism. She discusses the challenges faced while raising her autistic child in an apartment setting. A professional from the Kenya Institute of Special Education (KISE) provides insights on autism and offers resources available to parents.
The video highlights some signs of autism, including: - Lack of eye contact - Hyperactivity - Echolalia (repeating sounds or words) - Difficulty playing with toys - Insistence on routine
The Kenya Institute of Special Education offers various services to support children with autism, including assessments and therapy sessions. They also plan to launch an online course to train parents on how to manage autistic children.
Thanks for watching this episode of Cele's Reflection.
Welcome back to Celeste's Reflection,
yet another Wednesday with another episode.
Now, this topic is something that I've received
so many requests from you guys telling me let's talk about it.
You guys, I've got DMs, I've got emails,
people are asking me, Celeste, can you talk about autism?
And I've also received it from word of mouth,
like I'm meeting someone and I'm saying, can you talk about autism?
So here we are, today we are at KISE,
Kenya Institute of Special Education.
So autism, of course, is a special education.
Now, I am not alone because I know nothing about autism.
I am representing that person
who sent me here to talk about this topic.
So I have two guests with me on set.
They will introduce themselves and then they will give us what we need.
I hope we will get it.
So let's start with women first.
Hello, my name is Samu, a mother of three.
And I have a daughter who is my firstborn, living with autism, yes.
Thank you so much. Next.
Good morning.
Good morning.
My name is Elnette Nyawundi Harika.
I work here in Kise.
I'm the head of a department called Psychosocial Different.
And this department houses two departments.
That is autism.
And emotional and behavioral disorders.
So, Karibuni, I hear you have come here to learn.
Yes.
But you know something, I'm sure.
You said you know nothing, but I know you know something.
A little bit.
A little bit.
A little bit.
Yeah.
Karibu.
Asante, Simon.
Asante, Simon.
So.
I don't know whether what I know is fact,
that's why I'm here, so you'll help me find out if it's fact.
I feel like lately autism is on the rise, a lot.
I don't know if it's because we're parents,
we hear it, but I feel like it's a lot,
it's very, it's a lot, if you get what I mean.
So is it a fact, or am I just telling myself it's a lot?
Okay, you might be very right because of several reasons.
I think autism today, as we are talking, it is on the rise.
And we cannot attribute that kind of numbers that are going up
because of several reasons.
One, it can be because now we are educated.
We have the awareness.
We know what autism is.
And we are googling, we are researching, so when we are walking
in the neighbourhood we are likely, or in the church, we are likely
to see certain kids and then we say, oh, that child has autism
and because of that many people are talking about it.
Another reason is because we have created these cases here,
we do a lot of assessment.
And most parents, when they have detected
that there's something wrong with their children,
they take them for assessment.
And here in assessment, we have the numbers coming up
because the message is going out there
and parents are bringing in their children.
So that awareness, assessment has improved.
And it is happening that the numbers
are rising in the urban areas.
Especially in Nairobi.
I think most people who stay here, they have gone to school
and whenever they detect a problem they go
in for intervention right away
as compared to the rural areas.
So you might be right that we are having numbers coming up.
And there are so many factors that are contributing to this kind
of the rise of the numbers and many other things we will talk about.
Okay. So maybe we start with Mama Tanisha.
It is Tanisha. I love that name.
So tell us your journey now that you've said.
Also, how old is your kid? How was it for you? Just briefly.
Okay. Yes.
Okay. Yes, I'm Mama Tanisha, the girl living with autism.
Yeah we started our early intervention very early
because we detected she had a problem when she was
one year eight months. She could not,
she didn't have eye contact and she was really hyper. At one
year eight months we would not expect a child
to run to be you know to have a lot of energy
but I didn't I just thought hey my baby
is how she's like I think attaining her milestone very fast
So for me, I didn't think it's a problem.
But when I could call her and she could not look at me,
is when I started thinking, well, this is a problem.
How can a child speak?
At one year, eight months, she's supposed to have recognized her name.
And then I had a neighbor who alerted me and told me,
Matanisha, I think you need to go for assessment.
Because she had an autistic boy.
She told me, I'm not saying that your child has a problem,
but I think it's better when they will visit that.
So after two years, when we went to Kenyatta
National Hospital, we met a doctor and she
said, he told us, we are not going to rule out,
she has autism, but she has autism signs.
In fact, then...
He said she might have ADHD.
ADHD, I don't know if I'll be able to say it.
Yeah, I can help you.
You can help me.
It's called attention deficit hyperactivity disorder.
Yeah.
Is it part of the...
Usually it comes with autism.
Okay.
We call it comorbid.
Most children with autism.
They are hyper, they run around
and all that and whenever you see them doing all those things
it means that they might have an aspect of ADHD,
attention deficit hyperactivity disorders.
Okay.
Yeah.
So after we were told to wait,
we give her like six months to see if she's going to improve,
maybe she's just growing.
After two and a half is when we went back and she was diagnosed with
with ADHD and autism.
I'm not telling you it was something easy.
Doctor, can you tell us what exactly is autism?
Because now, from what she's saying, we might have kids who are hyper.
Okay.
Does it mean that they are autistic?
Can you explain to us what exactly is autism?
Exactly.
Okay, let me start by correcting you.
I'm not a doctor.
So, we are just teachers
who are trained on this area,
and then we work very closely with
the doctors,
so you are very close with any other partners in this area.
Maybe let me start by saying what is autism.
Autism is a neurodevelopmental disorder.
That affects children on how they communicate
and how they interact with the world and they are
in terms of socialization, how they socialize
with other people. So this disability
affects a child in three areas.
How they communicate, socialize and then how they socialize.
And then how they imagine or how they see the world.
For example, right now I feel
so affected by my colleague here.
It's because I have that kind of a feeling.
But when you have a child with autism,
this might be like nothing, nothing.
Yes, don't call them that they are sadists, but...
They cannot imagine what others are going through,
how they are feeling.
So that is, basically that is what autism is all about.
And then when it comes in terms of communication,
they might be having issues on how to express themselves
and even how they receive communication from the outside world.
For example, you have seen in the neighborhood a child,
when you say, what's your name?
And then the child asks you the same question, what's your name?
So you say, my name is Celestine.
And they will say, my name is Celestine.
So they repeat more of like a choralic
kind of sounds that they capture from the environment
so like that's a that's a sign
that should tell you something yes they they
are always reversing um any reversal of nouns
reversal you know they they don't have that they take things
Things that...
they cannot be able to know the details about the things
Like, if I say I am a lion, they will know that I'm a lion.
It doesn't mean that I'm strong.
So they take things really thoroughly like that.
Oh, okay. Oh, I get you now.
Yes.
So, okay.
And they are always, they don't have friends.
They had, when they are playing, they play by themselves.
If you get them toys here, they will pick certain color,
and they are always playing with the same color all the time.
They don't get tired.
of doing things the same way,
they have certain routines that are, if you break them, you
frustrate them, then you trigger in that hyperactivity and so many,
so many characteristics that
you can see with those children when it comes to,
they are not, some of them, they don't
like to be touched because they feel irritated by that kind of touch.
Others, they like to be touched.
So, because of that, now I'm bringing in another aspect of autism.
It's called autism spectrum disorders, with an S at the end.
That one means that these are so many related disabilities
that have got common things that are associated with autism.
So that's why it's called a spectrum.
It's like a rainbow. Yes.
So Mama Tanisha.
How old is Tanisha now?
Tanisha is 11.
11 years?
Yes.
Wow.
She's 11.
Yeah, she's really grown.
But okay, we are still non-verbal,
meaning she's not able to communicate.
We are still hyper,
but at least we have gotten a few things like toiletry.
She's able to take herself to the toilet.
She's able to feed herself.
This day she's aware of her environment.
She doesn't harm herself so much like before.
Although what she does when she gets angry, she bites her hand.
If you look at her hand, she has a very big mark
because she doesn't fight people, she fights herself.
Instead of fighting you, she can only bite herself.
But we are trying hard not to make her feel irritated
because when she gets irritated is when she starts biting her hand.
So she's getting better.
We are praying that she will.
She will.
When you say harm herself, how was she harming herself?
She bites herself.
If she's not happy about something, she bites her.
Maybe I can say something about that.
That's how our child communicates.
Mm-hmm.
In fact, that one is a show.
The expression.
She's communicating to us that you are not understanding me.
When she doesn't have that communication
of saying what she wants or how she feels.
Or anything else that she wants to express herself.
And because she cannot be able, she knows,
she feels that I need to tell Mama this.
But Mama cannot get that,
she cannot get that communication to the Mama, to the mother.
What happens, she...
...transfer that kind of frustration to herself.
So this is our communication.
So we need to understand what happened before
the child started biting herself.
So those are some of the things we train parents
and guardians to watch out
when a child is having self-injurious behaviors.
The child is telling you that there is something I need.
So you need to learn.
When and how that child talks,
how that child expresses himself or herself.
What happens before a child gets this kind of agitation
or hyperactivity?
Then we can reorganize the environment
in such a way that she can feel good.
And that's what we do here in school, the training that we have here.
We bring teachers here to train them
on how to detect those kind of things.
And then they can be able to assist these children.
So we become their mouthpiece in terms of communication.
And then we empower the parents, like my friend here,
in terms of what to do to make that child live
and learn and be happy.
That's our objective here.
And we do it very well in Kise.
Yeah, we have a diploma in autism.
And those who are interested, they can come and we train them.
What, what, what can you say causes autism?
Oh, okay.
Autism, we are up to yesterday.
We don't know what causes autism,
but there are possible causes.
I've not said that those are the ones.
One, it can be like genetics.
We have realized that we have parents.
We hire children who are also autistic and because
of that our research is kind of we are working on that area.
There is a relationship whereby we find parents
who are giving birth to children with autism.
So genetics might be part of the reason what causes that.
It can be the environment, the environment where we are today.
So many things have changed.
The food we eat, everything, even the air we are breathing in.
Probably it might be, you know, we are having so many changes
and then they are affecting the children that we are giving birth to.
Yeah, it can be so many other things that are happening in the world.
Also, we have biological
and environmental factors that we are thinking that causes that.
And then the lifestyle has changed.
You're not.
You know, like right now,
there's so much about we are eating food that is serving mercury.
Those kind of impurities in our foods, they are likely to be...
contributing to this kind of a disability.
So that's why we are thinking that long time ago we didn't have this.
Maybe it was about awareness, creation and all that.
But right now the numbers are going up because most people are coming
to live in the urban area.
The food we are getting from Githurai,
we don't know how it is and all that.
And many other factors.
What can you say about TV?
The cartoons and the Cocomelons.
Okay, yeah, it has got advantages and disadvantages,
but what we can say is that
Is that...
the TV itself is not a bad thing.
The only thing it cannot contribute to autism
because that is an internal thing.
So this is an external thing.
What we need to do, we can use the TV in a manner that is controlled
in a way that it can boost a child's communication
and it can turn to be an assistive device that can support
the child to acquire certain skills that the child is not having.
Even a child can learn social skills
from the TV if the child is watching.
There are so many programs about sharing,
caring, that are being broadcasted in the TV.
So those kind of programs, they boost a child's social world.
And we cannot say now that the TV is now,
because we are having TVs all over, they are causing autism.
No, these are assistive devices that need to be controlled
in a manner that we watch what the kids are watching.
We don't give them to those programs that are so aggressive programs.
They can copy the same kind of aggressiveness.
And maybe somebody can...
I've mistaken that one to be, maybe the TV has caused this.
Yeah.
Yeah, so that one I think we need to rule out.
Yeah.
So Mama Tanisha, what are some of the challenges
now that she has been almost nine years,
nine years with your daughter?
Like what can you say the biggest challenges you've had
raising a kid?
Mostly, me I would say, I've done what is required of me.
I've brought her for therapies.
She's been in school, so I've done my part as a parent.
But I feel that the fact that she cannot communicate
is where the challenge is.
Autism itself, there's no issue with it
because you cope with it and everything.
But the fact that up to now she's not been able to communicate
is where I feel the biggest challenge in raising her.
Because, again, when it comes to her diet,
we are doing our level best to give her what is required.
If it's everything that is required, she gets it.
But now the challenge is mostly on the fact
that she can still not communicate.
She's in a special school or she's together with...
I've tried special school, but now she's in a regular school.
Okay.
So the kids there tend to understand.
At least the teacher understands when she does this.
What we do, we have to work hand in hand with the teachers
because you are the first, I would say you're the, what is the word?
You're the first doctor to your child.
So you're the one to tell them what is required of your child
so that you can work together.
So what happens in a regular school, I would say it's still not easy
because there's no special teacher there,
but you work with what you know about your child.
Once she's able to achieve that, then you get to something else
because now you stay with your child
and you understand what is required of her.
You also bring her for therapy.
What they advise, you also take it to school and then you work with it.
So it's a whole, you have to work with the whole team.
You work with your teachers there, you work with therapists here,
so that you're able to help your child to stay in the school.
You've mentioned her diet.
She's on a special diet?
Yes.
As advised by the teachers?
Yeah, even here we advise.
There are things we are not supposed to give them.
I don't give her sugars, like things with sugar.
They make her hyper?
Yes, extra hyper.
We don't give them wheat.
We don't do milk.
We don't do nyanyas, tomatoes,
because they have something that makes them hyper.
Okay.
Or sometimes you might feed her something
and she starts laughing uncontrollably for a longer period of time.
So you have to check on her diet.
You have to be very consistent with what
is required of her in terms of food.
Because once you add on something that is triggering her...
It will be a whole day with you dealing with her,
with her hyper, which is not easy.
I think she has mentioned something about the diet and all that.
Maybe we can talk about how do you manage autism.
Yeah.
What she's doing,
she's doing very well in terms of managing the autism.
What we do, we try to manage those behaviours.
As I said earlier, ADHD,
that is attention deficit hyperactivity disorder, usually
accompanies autism.
And for us to ensure that the child learns
in an environment that is conducive
and can be able to get what the teachers are saying,
we have to manage certain things.
One of them is the food they eat,
as she has mentioned. She's doing very well.
The food that is having what we call gluten and casein.
We try to eliminate, that one is found, there's one that is found
in wheat, another one in milk products, and even others in plants.
The research that we have is that those kind of foods,
they trigger hyperactivity to increase, and it is more of a...
The chemistry thing that I can talk and talk and talk about it,
but we try to avoid those
ones.
And then we give foods that can make the child become.
And then that's one, managing the diet.
And then we have the therapist she's talking about.
She is positioned in the best place in the city.
And we have the best.
I hope you get time to walk around and see.
We have the therapist.
I can see where we are right now.
It's a playroom.
Yes, this is a playroom.
Then we have occupational therapy going on.
There's physiotherapy going on.
There's hydrotherapy going on over there.
And the latest research says that children
who are exposed to hydrotherapy, in fact,
it's basically swimming,
but in a treated pool that has got a certain kind of water
that is having a certain level of warmth,
because that kind of water is the best therapy
you can give.
Those children who are exposed to hydrotherapy on the other side.
It triggers talking. Speech comes out very quickly.
And it's one of the total therapies that you can give to a child.
We do that one, it's part of management.
And then we have the biggest one that is here, speech therapy.
If you walk around you can see we have a speech therapist
and we do a lot of speech therapy here and so many others.
We can even have play therapy that we have
and then I can't forget we have a sensory integration room
or the activities that we do.
You have seen the tambourines going on outside here and then that
is a dark room on the other side.
All those areas and the services that we have here they manage
Those kind of...
...kind of characteristics that makes
the child not to concentrate in class.
So we encourage parents to come over here, we do the assessment.
Then from there we will design the management program.
And then you bring your child here,
we do this kind of, give this kind of services.
And always if you do it consistently over some time,
there will be a tremendous change.
And most times the child, when the child calms down,
they are likely to learn they can be anybody else in this world.
They can learn how to manage those behaviors.
And they can be, you know,
economically viable like anybody in this country.
Question. I've heard you mention about speech.
Yes.
Can we tie delayed speech to autism?
Because most of the, I think...
One of the red flags is delayed speech.
When you're saying that the kid cannot communicate,
can we say that once your kid has the date...
This yes and no.
This yes and no.
You know, we have these old people who are always telling us the truth.
This one is talking about his father.
His father spoke to him when he was five years old.
Things like that.
We have to check individual cases.
And who is this child we are addressing?
That's why assessment is very key.
We take those details.
So we cannot generalize and say
that a delayed speech
is a sign of autism.
It might not.
But most times,
those children who have autism,
they have that aspect of
a delayed speech.
And when you compare them to other typical children,
where you look at the child of three years,
you see the milestones that that child has acquired,
and then you compare yours with the three years old,
you will see the difference.
Then those are some of the red flags that you can raise and say,
can I go for further analysis and further assessment
so that maybe there's something that is happening here.
And I'm so happy what she said at the beginning,
how she did the detection,
that the child didn't have the eye contact.
Yeah, that is one of the things we encourage the parents to do.
Yeah, when you have your child,
when you are breastfeeding the child,
look at that child.
If that child is gnawing,
and then looking at you on the face,
and kind of smile sometimes,
start thanking God that my child is okay.
But when the child is gnawing,
and then there is no eye contact and angaria pandeyile,
that is another red flag that you need
to say to take action very quickly.
Yeah, and again, like right now, you are going home.
When you go home, that child, that boy,
that girl at home needs to run to you and say,
Mom, when you were away, things happened like this and all that.
But when you go home and then you find a boy
who is like four years old,
and then after that, you say, I'm here.
He only looks at it once a year and continues with his business.
That is another red flag.
That you have to take,
why is this child so much interested in playing, doing their toys?
And then not my mum, so that can be an indicator.
And so many others.
That's a good one.
At what age, I'm sorry, at what age exactly?
Because you know, a child can be a child.
There's just a child.
Yeah, a child.
At what age can you tell?
Okay, now, after 36 months,
36 months is three years,
we can be very sure that the child has autism.
But these days, we detect this one at one
and a half years to even up to two years, like that,
by seeing what is happening with the child.
But when we are very sure,
when we are sure that this child has an issue, it's after 36 months.
But before that, of course,
we can have some characteristics here and there.
But we give that allowance to the child to grow.
And we just give it
that kind of allowance
so that at least when the child gets to 36,
we can go for assessment and for sure,
we can be able to say that the child has autism or not.
Okay.
So Mama Tanisha, the other kids are like,
how do they relate to their sister in the house?
Well, my kids, okay, Tanisha being the firstborn,
The other two kids are very much okay.
I thank God they don't have any condition.
In fact, they're very sharp, and that really encourages me
because through them, Tanisha has been learning a lot.
They've loved her, they've understood her,
and they're always there for her, yes.
Now they're all in the same school, so at least...
Yes, right now they're in one school
because I realized if she's not...
They're not together in one school.
Somehow she's never treated so well.
She might, okay, I feel like my other kids are my two eyes.
They always check on her.
Yeah, they are deputy parents.
They keep on checking on her sister.
They can even report,
Mom, Leo, Tanisha did that.
I misbehaved.
And then we are there together encouraging her not to do that again.
And I've seen her listen and not repeat some of those things
her sisters are reporting.
And I feel them being together
in one school has really helped her also to grow, yes.
What can you say, like, in the community now where you live,
what was the biggest challenge?
I'm assuming because I know it's not easy.
First of all, it's so unfortunate that we are raising our child in an
environment where you cannot leave her alone because it's an apartment.
Staying in an apartment with such a child is not an easy thing because
she wants to explore, she wants to be outside and play and be alone.
The way our therapist here has said, she wants a me moment,
and a me moment cannot be in the house.
She wants to be outside, enjoying the grass,
enjoying the outside environment.
That's a challenge that we are having,
because once you allow her outside, she goes to someone's house.
When she goes to someone's house,
you don't know what she's going to do.
She might even go to the kitchen and start doing stuff there,
which is very dangerous for us to leave her.
She might even take something which is poisonous.
So that's number one challenge.
Everyone is always locking their doors
because they don't know what to do for her
once she gets into the house.
Other people, they feel like,
well, she's a danger.
Like, hey, Tanisha Mingia,
what are we going to do with her?
You know, they feel like she's...
She's, her being in the house is not okay.
So if she comes to you, you'll just go and drag her.
You don't even allow her even for a second to even get into the house.
And she, if she does, you go very fast.
Yeah, Tanisha, you make sure you call her name.
Then you have to, like, be consistent.
She would think it's okay, now she can go.
And you have to make sure you lock your door.
Because if you leave your door open, you don't know her next moves.
So you have to make sure when you're moving, you're moving with her.
Because if she goes to someone's house and then she burns,
there's no way you're going to discuss that.
How was it, I'm curious as a mom,
how was it when you were expecting your second baby with Tanisha?
How was that?
First of all, for me, I wasn't to get her.
I was not for the idea of getting another baby
because I was really scared.
Now here is a baby that you don't know how
to raise her and you're thinking of another baby.
For me it was, I would say, imagine these therapies have always
been my, they've been help, they've been a big help to me.
You know, one therapist told me, Mama Tanisha,
do you know if you get another child, you will be very happy.
God will give you another sharp child. He will give you happiness.
Because I was already
depressed.
I was actually on depression medication
because for me the situation was not okay.
Everyone would see that woman is not okay.
Because every time we were running here to get roots, to wear,
I mean, I want solution, like I want quick fix.
You know, the way you can be desperate.
Until I got into depression.
And then now they started now, I started my healing journey.
Well, I was having Tanisha.
I have Tanisha here who is supposed to go for therapy,
and I'm also going for my own therapy.
But one therapist told me,
Mama Tanisha, I know why you're very depressed.
If you get another child, you will get a child like that.
I said, how?
He has never cried, he has been beaten up, he is getting a child.
ADHD is not something easy.
If he gets a child, he will get it.
If he gets a child, he will get it.
So my child had like burns everywhere.
I said, I don't know what you are talking about.
How do I get another baby?
How am I even going to take care of this other baby
when I already have this baby?
And then now things were even very hard.
My husband is even wondering,
and then you are for that idea,
and I tell you, you are not okay.
I don't even...
It was really hard, but one time I prayed
and trusted God for another child.
And I said, imagine me getting a child.
And to my surprise, I got a very sharp child.
And all my children are girls.
And I was praying for another girl.
I was telling God, don't give me a boy.
Because I know if I get a boy, I might get an autistic boy.
You see, the way you're thinking.
God, give me a girl.
I want Tanisha to copy from this girl who is now to be a genius.
You know, the way you pray to God
and God is answering you like kabisa kabisa.
The child came at two weeks.
Tanisha, alim rusha uko.
Two weeks, kali waka mesha arusha uko.
Oh God.
Because acceptance, you brought another child here,
and I'm the child in this house.
But the child grew understanding that her sister has a problem.
At two weeks, at one month,
she could look at her and see she's coming and start screaming.
A child at one month doesn't understand,
but at one month, if she sees him,
if he holds her like this, then she could scream.
And then you go hold the baby.
Then now you tell her, no, no, that is wrong.
So it was, it was a very interesting experience.
You're raising an autistic child
and a small child who is very, very sharp
and understanding that, ah, there's a problem here.
You're just hitting me, you're just hitting me.
There's a problem here.
So by the time she was turning four months,
that child had already known it was her.
They grew like that and also I grew letting
her know the sister is this way and she grew
loving her sister until now the bond was.
Tanisha would, Jahlia, no, I have another one.
No, the second boy is called Jahlia.
She talks about her sister like all the time.
She talks, she creates awareness
for other children.
No, kids are fond of Tanisha.
Thank
They know they can't hurt her because she has autism.
Wow, that is nice.
At least the class will educate you and you will be able to teach them.
you
That girl has created awareness amongst kids
very
and that really makes me happy.
My second last question, as we wind up, is autism curable?
much.
Right now we don't have
the medication that you can take.
We can manage it.
Oh, so we manage it.
We can manage it.
There is even some management that we can have through even medication,
but that is for management.
For example, if I have ADHD that we have been talking about,
we have some medication for that, but it must be doctor prescription.
And then when we manage the autism,
we kind of treat that autism.
And what we do is bringing these children closer
to normalcy where they can be able
to operate in the social world and do things others are doing.
So far, that's it. There's no surgery for that.
But there's a lot of management, and that's what we train here.
So what Mama Tanisha is doing, she's doing perfectly.
It looks like she has done a lot of research.
She's become a teacher.
She's talking about so many good things.
It looks like she has really googled, and she knows all this.
This is the first experience.
She's going to be my good partner here in training.
Because I tend to think that most of us parents,
since we don't know what's happening, we tend to safeguard our kids.
So whatever you're saying, put them there out to normalcy.
Like in that regular school, let them interact with the others.
Most of us, we tend to lock them.
There's something that I'm very happy she's doing.
The child is in a regular school.
Yes.
You know, I'm calling a regular school
because the so-called normal kids are there.
And that's where Natisha is.
And that's the best thing.
In fact, the first treatment that you can give these children
is to be with those children who are of the same age
and who are deemed to be normal,
so that they can, Natisha can learn from them.
So that is the right environment.
What we can do is to work with the school.
If we can get a teacher or teachers who understand what is this,
we can have several programs that we usually do
so that the child can be helped in that kind of environment.
And I really congratulate her for doing that
because I know the child.
She's not that serious.
You know, we have level 1, level 2, and level 3 of autism.
She's operating somewhere there between level 1 and level 2.
She can operate with other people.
The only issue is that communication, which she can acquire.
I think she's at 11.
As she moves to 13, 14, something will happen
because those are minor changes, and when the child is growing,
if she's doing the right thing the way she's doing,
things might be better.
And I think that's all I wanted to mention about the school.
Yes.
So, as compared to taking the child to a special school.
Yeah, special schools, yes, they are doing a good job,
but we reserve them maybe for those children
who have got a serious condition that needs to be closely monitored.
But those ones who are operating, running around, going like that,
take that child to the church.
Work with the child around, let the child go to school.
At the end of the day, the child will acquire those skills
and can be able to operate in the world.
Thank you so much.
As we close...
As we close the discussion, maybe Mama Tanisha,
there's a mom out there right now.
She was in that situation when Tanisha was two years.
She told me, you go, go and see a doctor.
Her neighbor told her, you go and see your child.
Her friends told her, your child has a stomachache.
What can you tell that mom?
First of all, understand your child.
Once you understand your child, embrace her.
Then don't hide your child.
You know, hiding a child means you're now depressed
and there's nothing you can do with your child.
Look for interventions.
If you feel your child has a problem,
don't stay with that problem and say,
It's okay.
If a parent tells you your child has a problem,
okay, don't take personal first.
I know some of us take personal.
We tell you, why are you even taking care of my child's life?
People take it personal, take it positively,
and you start looking for the problem, because the earlier the better.
Once you discover what your child has, or doesn't have a problem,
it can be just a delay.
Like our therapist here has said, it can be a delay.
Don't just say, let it be, people are judging your child.
Come to Kisle, go to hospitals, see the children's doctor.
Thank you.
They are able to rule out if the child is having problems or not.
Thank you so much.
And now that our therapist...
We have all talked about early intervention.
And there are parents who even go through early intervention.
They come to realize maybe at age 5, age 6, age 7.
All those parents, see they are welcome.
Let them come to Kise.
We do a lot of assessment here.
It's for free.
And they can come in Monday through Friday.
But let them not come in the afternoon,
because we usually do assessment in the morning.
That's the time the child is not exhausted.
We can be able to see so many things going on.
We do that assessment from morning hours to around noon.
So Monday through Friday, that's one thing they can do,
those who are around Nairobi.
And those who are around the country,
they can go to assessment centers that are in the counties.
We have our officers there who are called IACs.
And these days I think they are called CSOs or something like that.
They are being trained on how to detect and assess
and they can refer those children to those schools.
So what we do here, we assess and then we work with the doctors
to ascertain the diagnosis,
how we know that now this is their condition.
Then we design a program
and then place them to schools where they are given help.
That's number one.
Number two, I think another thing that we are doing here is very soon,
I think I am having a certificate course
in autism coming up online, evening.
Please let parents get this kind of certificate
in terms of we can teach them and that way
I think we can cater for the whole world.
So very soon we want to do the capacity building,
the parents, even you are welcome to take
our certificate and that way we can reach the entire country
and I'm sure we will have
the impact.
And if you have any issue that you want us to address,
you can come to your school.
Just drop an email to info at kise.ac.ke.
Our director can give us directions, and then we come to where you are.
We can be able to help you do assessment in the village,
do anything that you feel that Kise can do,
and then we can be able to help and support children of this country.
Yeah, thank you so much.
Thank you so much, guys, for coming.
I mean, I feel like...
We've learned, we've heard, we've known.
Because what most of us don't know is we lack information.
That's why we Google.
We Google, we see, hey, my daughter has a delayed speech,
we have autism.
And then we start locking our kids in.
Like you start, you get scared.
Because where we learn first too is Google.
So right now I'm glad that I have known of Kise.
I hope it will help people out there who don't know where,
And maybe before I end it, do you stop with the therapy sessions?
Do it, do it, as long as...
Okay, we, our therapist here, I had a calling me a therapist, I'm not,
but our therapist here, they have a treatment plan.
Okay.
So we can have, for example,
30 sessions of speech therapy,
and then we do, we re-evaluate.
We just go in and see what, is there any impact.
And then we can be able to go for another round or something like that.
So anything must have some kind of checks and balances.
And it cannot be like you start therapy and continue like that
without knowing whether it is helping you or not.
So the way they do the assessment after we have referred
the children to them,
they are the ones who are specialists to tell us,
let's go for 30 sessions, let's go for 20 sessions for this,
and then we see the impact.
And then we can add another one.
It's like a doctor saying two times two for seven days.
That is what we do here.
Okay. Thank you so much.
And thank you for even having us in this playroom.
It feels very...
Yeah, it's a very beautiful room.
And as I said earlier,
this is a place where the first places that we use.
We explore the kids here, and then we see how they behave.
That's where we can raise a red flag, how they are behaving.
So we observe them in this room.
Thank you.
So thank you so much, Mama Tanisha and our teacher.
We are very grateful.
I believe that if there is someone out there who needs information,
he will come.
I'm sure it will help one or two.
Yeah, it helped.
Your time has not gone to waste, I promise.
Okay.
Yeah, so thank you so much, guys, for watching.
It was nice having you too, guys.
Now we can say bye-bye.
Okay, bye-bye.
And I'll see you next Wednesday.
Bye.
Thank you.