CDC Newborn Screening: Why is Newborn Screening Important and Beneficial?

I remember hearing about newborn screening but I always thought oh you know that doesn't matter it doesn't apply to me you know I'm going to have a healthy [Music] child nobody really necessarily wants to speak about it because we don't want to talk about the wh ifs or the May or the could be I mean newborn screening literally saved my son's life without it you know we'd be living a different Journey it's really a blessing because we don't realize those Treasures that we can find in in in a trial that we go through it opens up that door and tells you this is the way you have to go now it's not just a heel prick test there's so much more to newborn screening that you continue to use throughout your journey once diagnosis occurs you never know what the outcome can be and you don't know what you don't know so until you take the testing and you take those steps to really begin that process you never know for a lot of people after those results it can be lifechanging there is no standard for all across all states it varies state to state so if you had um a child in one state and have moved it's not going to necessarily look or feel the same if our daughter had been born in New York just 3 hours North she would have been screened and our story would be completely different 3 weeks after our daughter died I attended my first newborn screening Advisory board meeting that began my 6 years plus now of attending these meetings and learning more about the system my bill was signed into law on November 25th of 2020 and now those kids have the opportunity because of her as a new mom I was just blissfully unaware that anything bad could happen to my child I just wish that I would have known that it can happen to you like she looked so healthy and she was doing all the things that baby should do and I'm a person that tends to believe that everything just works out obviously was very shocking to us but everything from that point has been so hopeful and there was a community that greeted us on the other side and that's what I want to be part of [Music]