여러분 제가 엄청난 소식을 들었습니다!!!

How much do I look? I can see all of your features So when I become a dad I can see all of your faces? You can look forward to it How much will it cost? 9 billion? 10 billion? Wow A crown shot Hello everyone, this is Hansol I came to the hospital today He's still trying to trick me He's been doing it for 4 years So the doctor who diagnosed my disability has organized a meeting for Leber's Neurology So I came here today Let's go He's been doing YouTube for 4 years But he's still trying to trick me He's lying He's not visually impaired He has the same Leber's Neurology He said this People keep telling him not to lie He's so stressed out because people keep telling him that This happened to me recently There was a cup noodle stand at a convenience store So I went to the store alone and I called my friend I told him I had to come I had my welfare card I was reported to the police Are you visually impaired? Yes, I'm visually impaired How long have you been visually impaired? I was diagnosed 2 years ago But I've been visually impaired for 3 years I'm visually impaired too But people still think I'm faking it They say my eyes are fine So people tell me to wear sunglasses Does that make sense? I know You wear sunglasses But people still think you're faking it I know, it's sad Have you ever been suspected? I've been suspected of taking drugs on the subway Can you see my face? I can see the outline of your face But I can't see your face We're trying to focus on the sound That's right It's nice to meet a patient with the same condition It's an honor to meet you Hello What's your condition? I'm also suffering from the same condition How long have you been suffering from it? It's been 4 years I don't think people will think you're visually impaired I didn't know I'd say this You're visually impaired, right? Yes, I am When you were diagnosed with the condition Did you see a change in your eyes? No Right? What about your vision? I can only see the shape of my eyes I can't see the left side Have you ever been suspected? People who see me for the first time If I don't say it first They say I'm visually impaired I've heard that a lot There are people who have a change in appearance There are people who are not like us You can get it wrong I explained it Don't lie I don't think this is it It's not a fabrication I didn't cast you How old are you? I'm 17 17 years old? How long has it been? Since 2017 6 years? Oh I don't think you're visually impaired I can't see that much That's why people don't know That's right How much do you see? I can see all of Hwan-soo's features Really? Oh Even if it's the same disease The vision is different That's why it's hard for people to recognize That's possible So all the diseases are different The disease is the same Oh, the disease I'm sorry How long has it been? It's been 3 years How old are you now? I'm 19 years old Did you see a change in your eyes? No, I didn't see anything How much vision do you see now? I can only see the shape of people So you're writing a dot? Yes, I'm writing a dot You're not visually impaired, are you? Have you ever heard of this? I hear a lot I usually tell my friends Old friends say, Hey, you don't look like a visually impaired person Yes, that's right So I'm fine with this What do you think? People who don't know Hey, you're not visually impaired I want to explain Yes, about my situation But even if I explain There's someone who doesn't listen I'm interviewing several people like this And you have to let people know a lot about Leber's neuropathy It's been a while since I've seen you again I had an interview with you two years ago But if I upload it People will know that Hansol has Leber's neuropathy Someone said I bought you That's not true I'm not bought I'm a visually impaired person, right? Yes, that's right What kind of disease is Leber's neuropathy? Can you explain it to me again? Leber's neuropathy is There's a sudden change in the DNA The optic nerve is damaged and the vision is lost But what you need to know is I can't see the center Because the surroundings are alive I can see some form with it I get misunderstood too much So even in my treatment You came in alone, you saw the treatment, and you went out alone I've been misunderstood so much I'm sorry to hear that I think it's a matter of cognitive improvement Even if the disease is the same, the vision is different Of course So there are people who only see the light It's improved to about 0.1 Some people live without feeling anything I was diagnosed by you 13 years ago You told me a lot of people would get treatment if they waited I'm curious about the current situation I'm sorry to say this, but there's still no clear treatment Supplements and genetic treatments are being prescribed It's quite effective, but I think we'll have to wait a few more years Is genetic treatment the most hopeful treatment? The disease itself is a genetic disease It would be best to correct the sudden change So such research is ongoing in Korea If there is a good result, I think there will be a way to receive treatment within a few years I heard that there are people who came from abroad to do clinical trials Is there a case where he got better? One of them got very good He recovered to 1.0 Awesome But if the rest of them all got better You'll judge that this is effective It's too limited Whether it's better because of genetic treatment It's hard to judge if it's just natural But if you collect all the foreign data There's a positive signal that it's still effective I heard about genetic treatment from you today Will it really work? I think you can look forward to it Oh, awesome Then when I become a real dad When I have a baby Can I see the baby's face? I don't think so I think I put too much pressure on you That's a little burdensome Right? It may take a few years There will be a helpful result soon Then the most curious thing is For example, genetic treatment came out like this How much will it cost? It's not this disease In the case of other diseases It's a very astronomical cost Because it costs a lot of development money In Korea, medical insurance is well set up I think there will be a lot of sponsorship and support systems in the country Do you think we need to know a lot about this disease To get a little more elasticity in the development of treatments? That's right Through the idea that there is such a disease The life science or pharmaceutical companies Then there is such a disease Let's make a treatment So if you don't have this perception at all Pharmaceutical companies, science and medicine I don't try to cure that I think it will proceed faster if I keep giving my voice I hope you will be very interested Lastly, if you could say something about this disease Our Lebovitan myelitis is It's a really scary disease that suddenly disappears in the 10s and 20s So in foreign countries It's enough to say that you live with a bomb Because I don't know when it will disappear So this needs to improve social awareness Even in the development of pharmaceuticals that go into the pharmaceutical industry The government has cut off a lot of R&D business Because of that I hope our researchers will not be intimidated Yes, fighting! Fighting! Han Sol, can I see you later? No, I used to be a visually impaired person Until 10 years Oh, when will I see you? I lived with this thought Honestly, after 10 years I might not see you forever I just have to live well now I lived with this thought But today, I went to Hwanho and met the doctor Oh, genetic treatment? Oh, something is still being developed I might see you later I had this thought So that the treatment can be developed well I'll let you know a lot of my excuses So later on, I'll be a one-shot Han Sol channel I will work hard until that day Oh, and Now, I told you today that there are so many visually impaired people Now, if a visually impaired person is holding a white cane Oh, that person is a visually impaired person I hope you know There's a saying, put on sunglasses If you put on sunglasses and you're a visually impaired person What kind of people are walking on the street? If you put on sunglasses, are you all visually impaired? So I hope you know the meaning of this white cane If I see you again, what do you want to see first? My face?